Stopping…

The past five years, in particular, have seen me running around, unable to pause. It were as though there was a big scary monster pursuing me. I became embroiled in the world of demanding schedules, with cross-cultural references, faces and world news seared into my mind. If I stopped, I would have to acknowledge grief. I would have to feel physical pain. Hell, I may even cry and fall apart. I was on a trajectory of keeping my name out there, producing work and being connected. It helped that I desired to escape the house as much as possible. Armed with a little bag of snacks and my Opal card, I ran. I move to a beautiful and peaceful home and what happens? Every memory is vying for attention. Within the peace has come a storm.

I had to laugh the other night. My daughter was cuddled up next to me, and I woke with the most excruciating lower back pain at 1am. I fumbled in my bedside drawer and found my TENS machine. Drowsily attaching the pads, I turned it on. I gave myself quite the electric shock, as I had unwittingly put it onto top speed! I lay there in agony, laughing whilst trying not to disturb my daughter. I read a book the other day, and it described in great detail, the ward at the Children’s Hospital where I had spent many weeks at thirteen. It talked of the ICU. The moments I was actually asleep, were spent dreaming of these places. The smells, sights and sounds were alive.

I have just wanted to sit and cry. Chronic pain is merciless and cruel. Trying to manage life takes everything I have. I will book in for scans to see where I am up to. My main goal is to keep walking. If that is threatened,  I will have surgery. At the moment, I am preparing meals, meditating, setting up a new computer and preparing to write a new book, detailing some of Sydney’s secrets. I am exhausted and excited at the same time. I know I have a degree of depression, but its hard to tell what is caused solely by not sleeping and being in pain. It is confusing, to be able to laugh whilst feeling crummy. To have anxiety when the phone rings and yet be able to do other scary things. Damn, we are complex beings!

I sit and grieve for those whom I lost. Grief doesn’t happen on cue, rather it comes upon us like a wave crashing in. Physical pain is the same. Sometimes it can be held back so as to be tolerable, whilst other times, it cant. Just as I have times where I can sleep for 12 hours through exhaustion, so I have times when I sit and cry. There is nothing to be done, but feel it and allow it. I look out at this rainy day and see the torrent. I also see how it is nourishing the many rose buds in my garden. This week, I am not going anywhere. I am staying home, putting on my brace as though it were a seatbelt and preparing myself. Songs are coming into my mind, alongside memories. Its okay. I am going to be okay.

Alongside the full calendar and buzzing phone is a woman desperate for rest. I just can’t do things at the moment. I need to process what I am thinking and feeling. How often do we actually do that? Allow ourselves time to determine what it is ours and what belongs to other people? When I am done, I shall return to society with a full cup, rather than a cracked glass, leaking fluid, rather like my spinal discs. Dancer, the budgie, has had moments of jealousy since we got Noel the cockatiel. If Noel dares to toddle near her, she has a tendency to let off a string of budgie expletives and try to pull her tail. I have just had to assure Dancer that she is valuable and just as loved. If I go into retreat, I hope I am just as loved as during the times when I am flitting from event to event. There is nothing that anyone can help me with. I just need rest, to come up from the tidal wave of 2015. To scan this spine and cleanse my heart and mind.

Rain doesn’t last forever, but its effects are felt deep in the soil. I am coming out of a haze even I cant fully comprehend. I think that is what keeps us silent about these times. We find it hard to articulate what is going on within us. After having a baby, we were once kept in hospital for quite a while. Sundays were a day of rest. School holidays were spent in unscheduled splendour. Maybe it’s time to just be and let the days unfurl again.

 

 

 

Festivities of 2015


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At a time when I wanted to be up and running, my back screamed ‘no!’  Pain medication was upped and I have needed to lay flat in between all the craziness of the season. I know I shall require further surgery, but there is a lot to consider. Two people who are dear to me have had major issues since their spinal operations. It is indeed a risky business. There is also the cost, rehabilitation and time spent recovering to think about. It does my head in. My neurosurgeon has said that it will provide no relief from pain, though structurally shall be necessary. I wait and I breathe through it. I hope to get through 2016 without surgery. I am going to plan better and have adequate rest between outings. Adapting and accepting what is… No more running around. It has been good, this stopping. I didn’t have Wi-Fi until yesterday, and I lost my phone somewhere in our new home. I pottered and played games with my daughter. We talked and organized. It was grand.

I made a trip into Sydney before Christmas, and caught up with these wonderful friends. There was torrential rain, and we got wet as we explored our ever-changing city. Anything can happen in Sydney, and you meet wondrous characters, such as this cluster of elves.

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We went to see some local lights with two majestic Samoyed’s and didn’t get far as everyone wanted to pat, photograph and talk to them! They did meet The Grinch and Santa Claus, however.

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Christmas Day, we went to our friend Dianne’s for lunch. She had a lovely assortment of relatives and friends at her place, and Santa even made an appearance! I sampled Yorkshire pudding, bread and butter sauce, trifle and a vegetarian feast. Dianne loves Christmas, and by the time you leave her house, you tend to adore it too. The warmth around that table was outstanding. It was a celebratory feast, for Dianne has faced the eye of a storm and is still standing. How she did it, I just don’t know.

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My daughter expressed concern about Santa’s lack of a tummy. He is English, as it turns out, and fond of running marathons in thongs. I love seeing Australia through this UK family’s eyes. They point out things I have failed to notice, and make me fall in love with Oz anew. Whether it be a native tree, or a whimsical birdsong, it is all appreciated.

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We then went to our friend Mel’s house to be with her family. I may have brought my blender and prepared Mojito’s, as well as a cocktail of fresh peaches and champagne. Mel’s mum complained that her Mojito wasn’t strong enough (the other grown-ups watered it down with soda water), and I felt vindicated! Channing Tatum was brought out, as per tradition, and made to pose. The girls performed a delightful dance, and we played games. There was sadness, as my friend lost her father this year. His absence was felt acutely. We held onto each other; how I wished I could change the events of 2015 for them all. Why does the world tend to lose good people early? I had to excuse myself once or twice to dab my eyes. I shall always treasure this gentle man, and the qualities he carried. I hope that you all have men in your lives with similar traits.

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I received some beautiful gifts. Amongst them was a folder I discovered on my doorstep. I thought it so clever. The take a break bag contained tea and chocolate. The pamper pack contained bath salts and a tea light candle. There was a pen, a calendar, inspirational cards to cut out, colouring in and strategies to help you cope when you are finding it hard. Such a heartfelt and precious gift.

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My friend had also included knitted bracelets and incense in her wondrous care package.

I received this 2016 Memories bottle from Dianne and her family.

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Isn’t this a beautiful idea? I shall fill it to the brim with every kindness shown me. Every occasion that has sweetened my life shall be noted.

Boxes for Christmas  is a local organization, that gives people living in aged care facilities their only Christmas present. These people never receive visitors. Imagine their joy upon receiving a gift from someone who cares on Christmas Day. I thought it was a brilliant idea! I was  touched that a friend purchased a box in my name.

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It was a quiet Christmas, and one of great physical pain, but friends made it bright, and my daughter had a magical time as a result. My back used to be made of steel rods, and I was rigid. Now is the time for fluidity and acceptance. As I age, my spine is deteriorating. There have been mornings when it’s just too much, and I think of going to hospital. I know that if I did, I would be back on the trajectory of scans, surgeons and theatre. I am not ready. So, I whimper in the shower, spray a concoction that burns and provides comfort, and do my brace up tight. Whilst there are friends and birds, children and light in the world, I will continue, just at a slower pace. May 2016 bring this world the peace it so desperately craves. May it begin with us.

 

 

 

 

 

Traditions, Christmas, Darkness and Light

Can you feel it too? There is loneliness and pain, darkness and light flitting about the earth.  Christmas Day in Australia is taking place on a full moon. You can’t get more intense than that! People seem to be exhausted and have let traditions slip. Annual get-togethers haven’t happened, and events attended each Christmas have been neglected. I was feeling melancholy, then realized that I haven’t been to a carol service, local markets, nor caught up with friends. All the things that make life lighter and give you something to look forward to. The only event we went to was the lighting of the Martin Place Christmas Tree, and I was finding it hard to sustain the Christmas spirit until I went to a loved one’s house and was gifted these blankets.

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Hand-made in Ethiopia, their sale benefits Hamlin Fistula Ethiopia, an organization founded by Dr Catherine Hamlin, whom still does the rounds of the hospital in her 90’s. I had tears when my daughter and I were gifted these blankets. Young women had crafted them a world away. The fact is, one can be in Ethiopia in a day. Restoring these women’s dignity restores us all. I will treasure these blankets all my days.

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My little girl asked me to close my eyes Saturday afternoon, and presented me with this little girl, aptly called Noel. I have wanted a cockatiel for the longest time and am delighted with this addition to our family. I couldn’t have asked for a more thoughtful and wondrous gift! It has been cute watching our little birds desperate to impress her with their songs and tricks. She adores them, and loves going into their house and hanging out with them. Whilst birds and thoughtful kids, blankets and people such as Dr Catherine Hamlin are in the world, life is great.

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It has been a new frontier, starting home schooling. I identified as the ‘school mum,’  helping out, and attending assemblies and concerts, carols, fetes and movies. I think we have both felt a little adrift this season as a result. It is a whole new way of life, and we are so grateful that she will be seeing her old school friends as well as new friends through the holidays. I am so grateful to my friend Lisa, who is a librarian. She brings around books aimed at dyslexic kids. The stories are engaging and it is a joy to watch my daughter read. We are getting there with building up her confidence. This lady contacted me, explaining we had mutual friends and that she would like to help. Help you have, beautiful one.

I have had periods of ferocious flashbacks and what those in the know term ‘the horrors.’ Aptly titled. Trying to function whilst your heart is in your throat and your voice is unable to relay what is going on inside your mind… We have needed to stop, and just be together. We all need to stop once in a while and have nowhere to go and nothing to do. There has been a lapse in traditions this season. I love the story I heard of a lady who goes on a long walk and picks flowers with her children before opening the gifts around the tree Christmas morning. This week, I shall be honouring some of my standards, and it will seem I am being drip-fed light. It will feel like Christmas. I wish there was time to see everyone I want to, and go to everything I desire to. Time is a cruel master on this earth, and you can only do what you can do.

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Moving has brought home to me how much we tolerate. I am sleeping better here, and am certainly much more content. How I lasted in the former place, I don’t know. You become used to unpleasant situations, but then it reaches a point when you break and say, “I can’t do this anymore!” In the breaking down, there comes the breakthrough that you need. It is so quiet here, and the fragrant roses continue to bloom. Life isn’t perfect, and there are challenges, but at least I can be alone with my thoughts. This is the home that love and friendship built, after all. I shall never forget everyone’s kindness.

Go gently through this season, and please, be kind to yourself. I think we will look back on 2015 as the year of dramatic change, with people leaving and lives being shaken to their core. We are almost through it, kids. As I watch Noel throw her water dish from her platform, I smile. She looks at me, as though saying, “what do you think of them apples?” I think those apples are fabulous, as I do this life. So much is out of our control, but if we adhere to our traditions, we can take refuge in what is familiar and safe. That is what I shall be doing this week, and it shall feel great.

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The Move-A Saga of Crooks and Christmas Wonder

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Last week, we moved house. It has been a long time coming. Five years in one home was a record for me, and it wasn’t even comfortable. It didn’t feel like a sanctuary. You get “stuck” in a place or situation without realizing it, and the thought of moving… Friends dropped boxes off throughout the past six months, and I slowly packed them and moved them into the garage. I thought I had de-cluttered sufficiently. We organized mover’s and cleaners so that we wouldn’t have to ask anyone for help. I geared myself up for the inevitable pain I would face with the rigours of moving, and my spine didn’t disappoint. A few days before, I lost control of my right arm and my bladder. Half of my spine went numb; the other portion was agonizing. I was amazed at my ability to peak before the main event! I told loved ones that I would sort out the new place within four days then have a good rest. After a period of a week, I would return to society. I was rather pleased that I had a hired team and wouldn’t require any assistance.

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The day arrived, and I couldn’t wait. I had swept up all my memories, and was taking only the good with me. I went to the new place early, imagining where everything would go. I noted that the movers had put some boxes in the garage, and remarked to my friend that they were “lovely young men.” They didn’t make a reappearance and I was told that they weren’t at our old place either. We rang their mobile but it was switched off. “They must have gone to lunch,” I kept repeating to myself.  We rang their boss who informed us that they had left and weren’t coming back. They had taken their fee from the credit card! Crap!!! We had a full house of furniture to transport and half a day to do it in. Hurriedly hiring a truck, we asked if anyone was around who could help. A fellow listened to our tale of woe at the reception area when we got the truck, and would you believe he turned out to be one of our new neighbours! He insisted on helping. Mums, children and men gathered, and the moving began. I burst into tears when I saw more friends alight from cars. Some brought food and cold drinks. An elderly fellow around the street from our old place was one of those who offered. It was a heat wave and I was astounded when they brought in wall units and fridges with a big smile on their sweaty faces.

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I kept saying “thankyou,” until they could bear it no longer and demanded I be quiet. I heard the children laughing and playing together in the garden. We had a gathering of good people, sitting under a fan, sharing their lives. An elderly man told me about being a ward of the state and growing up in an orphanage and how he is shy and lonely. “You are doing okay with this group!” I assured him. He mentioned what lovely friends I had, and I nodded. “They’re the best.” They brought in our old tattered furniture with great care, the last of the group leaving at 11pm. The next day, we informed the movers that we would go to the Department of Fair Trading if the money wasn’t put back in our account and begrudgingly, they relented.

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Beautiful furniture was left at our door-gifts from a dear friend- and food was delivered. What a dichotomy, to experience scoundrels and angels on the same day. I went out to the garage and looked on in dismay at the multitude of boxes stacked to the ceiling. Why had I kept so much? I could have halved it before the move! I felt overwhelmed as to where to start. A little dog from across the street broke away from its elderly neighbour and ran into my garage. It lifted its leg and peed on a box. I laughed and laughed. Maybe it was a sign?! I organized the house within four days, and then crawled into bed. I am about to re-emerge from my cave.

We couldn’t have our Christmas Tree up at the old place as there was no room. By a miracle, it was the first box we unpacked, and we set about decorating it. As each ornament was slid onto a branch, we gave thanks. Thankfulness for new beginnings, a beautiful home and for the best friends anyone could have. I have learnt that it is okay to ask for help, and that whilst there are scammers and shysters’ creeping around, waiting to pounce, there are more good people in this world. On the 1st December, I felt the power of the Christmas Spirit. It is love, kindness and servitude. It blessed my new home with its presence.

 

Babycakes (Also Known as Glitterball)

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I have an extraordinary daughter and she and I share an extraordinary bond. It hasn’t been an easy road, for either of us. It is a dreadful dichotomy, to want a child so desperately, and yet struggle when she arrives. I filled in the requisite questionare when I was pregnant and the alarm bells rang when the matron in the maternity ward saw it. Not only had I had major trauma in my life, but also a damaged body and little help. I couldn’t drive a car and was in a wheelchair in the later part of pregnancy. I felt more alarmed by my score because the matron was filled with histrionics. “How will you cope when you shall be mostly alone when she arrives? What will you do?” she trilled. Crap! How shall I cope and what shall I do? I began to ruminate on these frightening themes. It didn’t help that I had no experience with babies. I could barely recall being a child myself! More people doubted my abilities than believed in them.

I did IVF to have her, and that was an Odyssey in itself. I never thought beyond getting to the epu and then the dreaded tww. That was all my brain had space for. I felt so little, and vulnerable. I had to buy my pyjamas and dressing gown from the kidswear section as despite my enormous belly, I was petite and short. Very short. After my maternity visitation, I booked in for counselling after having been told that I was a prime candidate for perinatal and then postnatal depression. You know what was uncovered during these sessions? I had prepared myself for the pain that would unfurl on my damaged spine and kidneys… I had prepared myself for most matters. What I did have an issue with was boundaries. I had allowed people to run rampant in my life. I felt so fragile after IVF, and vulnerable now. I almost had her at 19 weeks, and it created major anxiety, even after the rupture sealed and labor stopped. I left hospital after several weeks, on high alert. As a result, my life and pregnancy became a free-for-all. All I wanted was peace and silence and I was getting little of either.

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When my rambunctious daughter arrived, I didn’t tell anyone save her godparents. I needed time with her alone. Oh yes, noses were out of joint, but at that stage, I was past caring. I didn’t want throngs of people touching her. I needed to get to know her! When the staff took her down the hall for her routine tests, she would roar until she was wheeled back in and then not a peep was heard. She always was a little firebrand who not only knew her own mind, but spoke it.

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At home by myself, it was tough. I could barely walk for months, and she had colic. She rarely slept and only stopped crying when in my arms. I was exhausted though enthralled. I tried every available product on the market to ease her suffering. Whenever the colic pain eased, I would search her face in desperation. I wanted her so much; did she not know? The other young mothers I knew all had routines set down for their newborn and they slept. I fell into postnatal depression, and sought appropriate help once again. It made all the difference. I stopped ruminating on my fears of being enough for this wondrous child.  By six months, she was a gurgling, happy little munchkin. I was making myself a coffee after settling her to sleep in her crib at the end of my bed. I heard a giggle, and turned around to see my 8 month old grinning at the door of the kitchen. I dropped my cup in fright. She had managed to climb out of her crib, landing on my bed, and then walked to the kitchen. Even as an embryo, she was in a hurry, doing what a 7 day old embie might within 48 hours. I came to know her personality, and she mine.

She hated being in her pram and I found out that she was extremely flexible in rather a  stressful manner. I was walking up the hill to a nature reserve, where my car was parked. I heard a strange clunk coming from underneath her pram though persisted with my voyage. To my horror, I found the wheels of the pram had run over my daughter! She had gotten free of the restraints and stood up in the pram! I ran to retrieve her and she was laughing, delighting in the game!

Then there was the memorable time in a play centre. We were attending a playgroup Christmas Party. Only one harangued girl was on the counter and the place was bedlam. I heard  my toddler call out, “hi mummy!” To my horror, she had climbed through the third level’s netting and lifted herself through a large hole in the roof. She was now standing on the flimsy net with nothing around her on the outside. Hurridly I crawled through the levels, and retrieved her by her feet. She thought it was terrific.

At four, I thought I had struck gold. I had discovered a meditation cd for children which carried her into the land of nod. Delighted, I put it on every evening. I pressed ‘play’ one night, and got the fright of my life. She had changed the meditation cd for rock music, and put it at full volume. She hid the calming cd and I haven’t seen it since.

I reflect on the tumultuous early days and am sad that I was so filled with fear. Heck, half of it wasn’t even mine! The colic ended, and whilst she was still a very wakeful baby, I let go of any notion that I could control it, and went with the flow. I slept when she did. If I had my time over, I would expunge any anxiety that I was too damaged to do the job of child-rearing properly. I would accept more help. I would try harder to stand out rather than fit in with what everyone else was doing. My daredevil insisted that I chill out, and I grew to understand her capabilities when it came to climbing and general mayhem. She has never fallen, and whilst I have anything to do with it, she never will.

 

Inside Out, Heatwaves and the Wonder of a Full Circle

Anastasia Amour has released her incredible tome, Inside Out! To receive a 15% discount, use the unique code, found here then go to her shop!

We are having a spate of heatwaves in Australia. It’s the kind of oppressive weather that sees you seal yourself in your home with the aircon. It is too hot to even consider going to the local swimming pool. The thought of walking at all is enough to drain your energy. I did go out Monday, into the city for a class my daughter attends. It was hot, though not yet a heat wave. The view more than made up for it.

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Afterward, we went to see a friend in hospital. Strangely enough, it was the hospital where I nearly lost my life five years ago. It happened to be around the corner from the building where I nearly lost my life two decades ago. I went past the old orthopaedic ward, where I lay flat on a rotor-bed for months. I greeted the vision that appeared in my mind’s eye. If everything is happening at once, as per quantum physics, then she may have been aware of my presence. She wouldn’t have thought in her wildest imaginings that she would still be here in 2015. She could hardly take in the year 2000 and its impending approach! I looked at my daughter as we got to the lift. She was unaware of the memories contained in this place. She didn’t know that she had cuddled me, touching my face, as I was taken down to have surgery to save my life. My pregnant friend was hospitalized a week ago. She has been through hell, since a car crash. Her spine was broken, and she has had much pain. She went into labour just before we arrived, and we stayed until her husband could be with her. She ended up having a beautiful baby boy. Life comes full-circle.  I had only bad memories of this particular area of Sydney, of threatening men and general menace. Here I was, talking my friend through the pain. My daughter was the visible sign to her that a lady with spinal injuries could cope, and that her child would be fine. We both delivered by caesarean, and it was a blessing to be able to provide her with  hope when all seemed uncertain. Meaning coming out of nonsense.

I am in the process of moving house. We were given notice at our old place five years ago, just before Christmas. It was shortly after I had been discharged from this very hospital after having two surgeries. I was weak and exhausted, and our run-down cottage was the first place I saw. “It will do,” I said at the time. You know when it is time to move on, and we have found a gorgeous house. I am packing a little bit at a time. Between working, home schooling, and the many, many things I am doing that are necessary and time-consuming, there is little time for anything else. I would love for time to be fluid, but it is a harsh taskmaster on this planet of ours. I can only do what I can do. I am well aware that this spine is rather unstable, and that ironically, at a time I need to be more active than ever, I shall need to rest it more so that it isn’t taxed to the point of breaking. Pacing myself and making lists on scraps of paper (which I then either misplace or pack). I have so many lovely friends who have kindly offered to help. I appreciate both their offers and their love. I am telling this body that I have twelve more days to get it all done. As an eccentric, I long ago set myself a set of rules that not only make me feel safe but make sense. I have a rule that any house I move into shall be set up within four days, not a box in sight. I tell my body that it only has to keep going for four days after the move, and then rest shall come. Sweet, wondrous rest. After one week, I shall be ready to rejoin the world, in time for Christmas. Sounds like a plan to me!

 

 

30 Day Challenge. Day 3-Your Day in Great Detail

I woke at 5am, and made myself a cup of coffee. I am still on instant. Who has time for coffee machines to do their thing? My activity stirred the guinea pigs, who began squeaking for breakfast, shortly followed by the birds. When munchkin got up, she had her usual soy rashers in olive oil (she calls then not-bacon). She then made herself a hard-boiled egg in our Eggo, a little machine that tweets when the egg is done! We were at the bus stop by 7am, in perfect time for the express service. Our train was waiting at the station, so our travel was seamless. It is a rare thing! My daughter was going to do a puppet workshop, with a renowned puppeteer and ceramic teacher from the UK. We were early, so I went in search of refreshments and we happened across a Les Mis costume exhibition!

Cossette's Wedding Dress
Cossette’s Wedding Dress
Fantine's dress
Fantine’s dress

 

 

 

 

 

 

 

 

It is my daughter’s birthday soon, and she found herself the perfect gift in Mozi, a Melbourne designer’s store. It was a dear little tent. She wants to set it up with soft toys and cushions. Every kid needs a fort and the lady gave us 10% off as it was floor stock! 11850986_1009100859123759_159290946_n My daughter attended the four hour workshop with the dear fellow and his wife from the UK. They quite often teach adults the act of puppet-making, and expressed sorrow that many grown-ups find it difficult to use their imaginations to make up a storyline. They came prepared with old plastic bottles, which became the puppet heads. They had already done the foundation, so the kids could begin painting. The children had a ball working together on a storyline, which they presented to us.

The base of the puppet head.
The base of the puppet head.

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My daughter and her puppet, Jewel.
My daughter and her puppet, Jewel.

Afterward, we went back to the shops, and I bought my daughter some educational games. I then had the best peppermint tea of my life!

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On our way to the station, we met a tame cockatoo. He was the dearest little thing. He came right up to my daughter! I was too enamoured by the scene to take a photo. We reluctantly left him to get to the platform. To our astonishment, he followed us! I had visions of him hopping onto my shoulder and catching the train home with us, but his friend flew down and coaxed him away. It was a glorious day! My spine was extremely painful, to the point I feared I may pass out from the pain. Fortunately I didn’t! In those times, I fly away from this body, and absorb myself in the sights, sounds and experience around me. It helps if those things are beautiful!

July: Frost, Snow and Anniversaries in Australia

I knew it was coming, I knew. I knew in June, that the end of July was inevitable. Yet, it seemed so far away. To my horror, as I was pretending to be a domestic goddess, organizing my child’s schedule, I uncovered that the anniversary was taking place this week. The date that everything changed. The date that would determine whether I lived or died…Whether I would walk again; drink water again, eat food again, fall pregnant or have a difficult time. Whether I would be in agony every moment (wakeful or sleeping), for the rest of my life. Whether I could drive long distances, sit for over an hour, use catheters or not, have scores of operations, with more to come. Whether I would need to have two surgeries at seventeen to save my life, my heart held in someones hand, my chest opened up. Then to be flipped over, after having floating ribs sewn off, to replace my back bone. To save my life. This was the date that would determine all that and much more. Whether I would have the mettle to survive at all. To sustain in the face of nightmares and torment.

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Can you believe that I have met my twin?! I stumbled upon this person’s blog a week ago. The anniversary of his being thrown from a height as a young person is in July. He is still affected by phone calls and door bells ringing. He said “I thought I was the only one!” He completed the quiz I put on my site to find out what your hippie name is. He got Flower, the same as me! The thrill of recognition-the regret and sorrow too- that somebody else understands what you felt that night. Somebody knows what it is like to hit the ground… I love this person, though I haven’t met them. What a privilege in the midst of a strange, disorderly life. Here’s to all survivors. It is a lonely path at times. I am glad not many in our circle can identify with this particular angst. I hold a pool of tears if you can.

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On the anniversary, I will hold my daughter, and partake in what was denied me, so many years ago. I will have a bath with aromatic oils, a broad-rimmed Italian glass in hand. In it shall be red wine, the hue of ground garnets. I will eat a hearty meal, slip into the covers of my bed in my warm room, and be thankful I am here. That bitter winter’s night, I was covered in dirt and blood, cast aside in a dark night of the soul and body. I was hungry, and in agony. I was thirsty and alone. I am still in agony, but the darkness has been bludgeoned by light. The loneliness by friendship. The thirst and hunger have been quenched and I am warm. The blood and dirt have been cleaned away, and what remains is a woman who is frightened no more. The worst has happened. It is done. I survived. More than that, I am flourishing.

Changing Minds

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I have slowed down, and my brain (and life) are better for it. I am actually letting myself feel the physical pain that I endure. It hurts, but it is real. It appreciates being felt. I am still limiting my caffeine intake and exercise in the sunshine each day. I am eating regularly and acknowledging feelings as they come up. It hasn’t been as overwhelming as I feared.

A production crew are shooting the next season of the excellent series Changing Minds in the district I live in. It will be shown on the ABC later this year. A beautiful mum I know was interviewed the other day by the crew. She was so brave as she turned her face to the winter sun and talked about her depression. How it felled her, and how she is making her comeback. I was in awe of her. The production crew impressed me with their sensitivity and empathy. The mental health sector needs more funding, and it needs it now.

I well remember when I searched for help for a loved one several years ago. I was frightened for them, that they may not make it. Time was of the essence. There was a procession of psychologists, doctors, scans, blood tests, and diagnosis’. Some believed this person had an adrenal issue, others believed it was hormonal. Still others believed it was depression. There were about ten different diagnosis before bipolar was diagnosed. I was left to sort through all the information as this person was too ill to do it themselves. Alternative health practitioners became involved in case it was dietary. You will try anything when you are so ill. The person became sicker. I turned to a church who offered counselling. I was asked whether this person’s family had ever been involved in the Masonic practice. I was bemused and asked  what this had to do with mental health. I was told that curses can be carried through bloodlines. I was aghast that no practical help was offered. It made this person become more insular, to everyone’s detriment.

Finally, a mental health service opened in our town. A place I was able to get to easily and which was free. As a support person, I was going down, and these people could see it. I was given excellent advice and was able to remain on an even keel whilst helping this loved one. I looked forward to my visits, and finding a workable way of life, for myself and this person. I rang to make an appointment late last year, only to find that this service had closed. The local mental health unit do their very best with limited resources. It is immensely frustrating and heart-rending for the staff. It took years for this person to reach a proper diagnosis. I am so thankful that they held on for it. They are stable, though their grip on life can be tenuous. I look forward to watching the next season of Changing Minds. I look forward to hearing from the dedicated staff, who do their level best in a system plagued with funding cuts and politics. I look forward to hearing the stories of the clients, who have been through hell and keep paddling. You all amaze and astound me with your iron will. There is something inside that makes you hold on; the promise of a beautiful future filled with restful sleep and wondrous times. Keep holding on.

Getting out in the Sunshine.

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A friend texted me the other day, and insisted on seeing me. “When are you free today?” he had written. I felt a pain in my chest, knowing I would be flitting from one activity to another, and then another. Then, a smattering of light hit the quagmire, and I replied, “I have an hour whilst L is at a class.” We sat down and conversed, he with green tea, and me with a strong coffee. It was my fifth of the day. He could see I was overwhelmed and questioned all that I forced myself to fit into a day. He was concerned. It was enough for me to be taken aback and review what I was doing. Home schooling my daughter, I was trying to be all things to her. Teacher, mum, social planner, and many more aside. I was trying to please all the people in my world, keep my commitments, and generally be functional. I had around thirty texts a day and around a thousand emails to answer. I was exhausted.

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There was no time to eat lunch, no time to change hormone patches, no time to see a doctor or exercise… Hell, there was barely enough time to down more caffeine! I had been feeling as though I were heading for a nervous collapse. Deadlines for articles and deadlines I put on myself. Put in a noisy neighbour who compromised my sleep… I would wake up and have to down two coffees. I would sit on the couch shaking with anxiety, filled with dread at all I had to do. I had to keep everyone happy. Sometimes I would hyperventilate and my stomach would churn. When you have so much to do that you don’t know where to start… My friend was right, and I acknowledged the wisdom of his observation. “I use business as an avoidance tool,” I replied. If I am busy, I can’t feel lonely. If I am busy, my physical pain is ignored. If I am busy, I don’t have time to feel the sorrow, depression and anger.

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If I am busy, I can avoid my social anxiety. I don’t quite know where I fit in, and if people actually want to see me. I don’t call friends out of fear of rejection. I am unsure of my place in friend’s lives. I am scared. Thus, I drink coffee of a day, run around like a mad thing, and drink wine at night to come down off my adrenaline rush. The wine brings me down, way down. I go to bed, sleep for a few hours, wake up with a dry mouth and start again. It has to stop. My friend held up a mirror, and I saw the truth. I had no spaces in my life. None. I have to let go of control.

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The school holidays began, and I vowed to not over-commit. A new playground opened around the corner, and I set off with my daughter. It felt wrong, and I had a panic attack. I felt guilt that I wasn’t doing things at home. That was a big indicator that I needed to do this, immediately. When depression hits, it hits in a big and scary way, like a tsunami of churned-up emotions. It tells me to stay home and hide. I have to do the opposite. We went to the park, and a friend joined us. We watched the girls play, and we walked in the sun. A few hours later, when we returned home, I felt refreshed. I didn’t drink wine last night. I went to bed early, and had a good sleep. The noisy neighbour was at it early this morning. I had one coffee, made lunch, and we set off for the park again. It was glorious. So many friendly faces, hugs and smiles. A friend even brought her little pony for the kids to pat. I am changing everything at this point. If I continue on this trajectory, I will inevitably collapse. More early nights, and less commitments are required. I have to. It will mean saying “no” to things that are stretching my limits. It will mean more time in the sunshine and for spontaneous gatherings.

Two years ago, I did a free e-course for people with anxiety. I completed a questionnaire which was designed to advise how far I had come.

‘Dear Raphaela,

Thank you again for your ongoing support of this important research – we really appreciate your time and benefit from your support.

We are pleased to say that the questionnaires you completed indicate that your symptoms have reduced since you first completed the questionnaires more than 24 months ago. Specifically, your symptoms of both panic and low mood have reduced by more than 70% and are now in the low to non-clinical ranges. We appreciate that the questionnaires do not always reflect people’s experiences, but these are good improvements to have made and maintained – we hope they are reflected in improvements in your wellbeing.’

I am never going back to how I felt as a young person; to how I felt two years ago. I wont. I do have work to do, and life does get busy, but I am going to cease pushing myself to the brink. It leaves no time for joy and happen-chance. I am going to walk in the sun, and we are going to play most days. I will find time. If emails go unanswered, if my phone gets switched off, so be it. I will snatch back time.

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L cloud-busting

I have to retrain my nervous system and my brain. I have to learn how to breathe again. I have to understand that caffeine is lovely provided its one cup a day. I have to stop using alcohol to make me feel comfortable socially and to drown out the panic which overtakes me at night. They are only habits, and a habit can be changed.