Last night, we went to Luminosity at Australian Technology Park. It had been a rough week on many levels, and I dragged my aching bones out of bed to get ready. There was no way I was going to miss an event run by Endometriosis Australia. This wretched disease has taken so much from my life. My battle is over after a vicious ten-year fight from the time of diagnosis until I went into premature menopause. My fervent wish is that our girls don’t suffer as we did. My daughter and I walked into a foyer bustling with activity, yellow balloons and friendly faces. I caught up with a dear friend, Naomi, who had been an inspiration to me before I started my IVF journey. We embraced, and it was felt on a cellular level. I will never forget visiting her after she had yet another surgery at RPA, a lady of dignity, reclining in a chair and smiling in spite of her pain. It was the first time we had met in person. I met the marvellous Donna, who had also organized the Luminosity event in Melbourne on the 7th March. The volunteers were all awe-inspiring.
I sampled the most delicious raw food, and we got our fluoro paint on. I made friends with women who shared their endo journey’s and we swapped numbers at night’s end. My daughter chased boys around, and put me to shame with her hula-hooping.
We entered the main room engorged with music and neon lights, and I basked in the glow of over a hundred people who have been affected by this disease. They were glowing for real! Some had endured twenty years of agony, had their bowels resected, had been on a litany of powerful medications, had been burnt, lasered, cut open and had IVF. They were heroines at Luminosity. We watched amazing performances, even an acro-yoga display. With a fused spine, I wasn’t bendy, but I loved the stretches. I loved feeling a part of my body, at one with it. A body which had harboured disease the size of oranges, and had the consistency of elastic bands.My daughter thanked me for the lovely girl’s night she had experienced. I promise you, little one, that if your tummy aches when you are older, I will be watching. I will get you the best help. I pray I don’t have to. To find out more about endometriosis, or to donate either time or money, go to Endometriosis Australia.