Lavender and Feeling Impotent

Have we tumbled into a dystopian novel, with the direst of storylines? Global warming and it’s inevitable effects, the pandemic and the horror of what is happening in Afghanistan. The Afghan people are some of the most gracious on earth. How can you not weep, upon seeing the footage of people, clinging to the exterior of planes? Where is our government, and what the hell are they doing? The sound of crickets is deafening.

We suffered the loss of loved ones and we’ve all suffered vicarious trauma, from the news, friend’s suffering ill health and job insecurity/unemployment and seeing beloved local businesses shutting their shops permanently, this current lockdown, too much to bear. What the hell do with we with all the pain? It’s easy to feel impotent in the face of it all…

I found myself unable to walk, when I awoke Monday of last week. Too many hours at my desk saw my spine complain. First there was tingling between my shoulder blades, which gradually turned into electric shocks. The pain was extraordinary. I saw my pain doctor and we are trialling a new medication. I am meant to go get a new MRI, but I won’t just yet. No good can come of it and so I shall muddle through. The combination of pain and anxiety saw sleep dry up, until I was only getting a few hours. I was delighted to come across a little box of promises at my chemist, which promised a deep, restful slumber and relief from nervous tension. I popped one as soon as I got home and prepared dinner. Sitting with my daughter at the table, I began to belch violently and the taste of lavender rose in my throat. My daughter looked at me with alarm, whilst I tried to figure out what was going on. Reaching for the box, I pulled out the information sheet and saw that listed as side effects, were indigestion/belching and lavender-fuelled reflux. The capsules were 100% lavender oil! Ironically, I didn’t sleep at all that night, because I was too busy burping! I should really read the instructions, before I take anything in future!

Speaking of lavender, before the capsule incident, I was really getting into it. Here are two of my favourite ways to benefit from lavender essential oil, without swallowing it! These recipes are cheap and easy to follow. Lavender essential oil can be found in the toiletry aisle at the supermarket.

Lavender Play Dough

1 Cup plain flour

1/2 cup salt

1/2 cup cold water

1 tablespoon vegetable oil

3 drops blue food colouring and 3 drops red food colouring (if you have any handy)

10 drops lavender essential oil

Mix together, adding more flour if sticky

Store in an airtight container and play with it as needed, for stress relief.

Bath Bombs

1/4 Cup Bicarb Soda

1 tablespoon cornflour

1 1/2 tablespoons citric acid

10 drops lavender essential oil

3 drops food colouring

Silicone moulds (as used in baking)

Spray bottle

Mix dry ingredients and then spray with water, being careful not to make the mix too damp. Spray and mix several times and then put into the moulds. Allow to dry, then transfer to container. Not only can these be used in the bath, but can also be put in the toilet to clean; in the laundry when hand-washing, or in saucepans/frypans that have baked-on food.

Yesterday, I had to go into the local supermarket. Armed with my list, I just wanted to grab what I needed and get the heck out. In the first aisle, I encountered a woman, talking loudly on her phone. Her trolley blocked the whole lane and all I could do was wait for her to move it. In the second aisle, she not only did the same, but she came so close to me, that I could feel her breath, even though she was wearing a paper mask. She was still talking loudly, a bank of people behind me, waiting for her to move. She obviously hadn’t gotten the memo about social distancing, as she reached over me to grab something off the shelf. By the third aisle, I’d had enough of her nonsense, and pushed my trolley through a gap. She wasn’t having that, so attempted to round the corner to the fourth aisle, at the same time as me. We narrowly avoided colliding, as she stared at me daggers. It takes a bit for me to blow a fuse, but I was dreadfully close. I was in a mood by the time I got to the checkout. The man waiting behind was smiling underneath his mask; I could tell by the creases around his eyes. He seemed to be a pleasant character. Behind him, there was a fellow who had Downs Syndrome and another man. They were hugging and it warmed my heart, even as the unpleasant woman shot me a glacial look from the next checkout. The man behind me insisted that the pair behind him, go in front. Conversations were had and I felt all the rage run out of my feet. It was then that I noticed the lady serving me. “How are you doing?” I asked. “You are doing such a good job, in what I imagine is a really stressful situation.” She thanked me for asking and opened up. She told me how many times she’d been abused that day and how understaffed they were. She said that the supermarket had never been this busy, in all the years she’d worked there. Five strangers connected, even socially distanced and from behind masks. I read today, that the average Australian performs 2 good deeds a day. I will hold onto that, and say ‘bah’ to the self-centred people. I think that who you were before all this strife, has been magnified during it. The lockdown has presented us with the community-minded and the self-involved. Thank goodness for the former!

What to do with the feelings of impotence? It can be soul-destroying, to witness all the agony happening in our world; feeling as though you can’t do anything as a little person. The supermarket connection made me realise that we must start locally.

To advocate for the Afghani people:

To advocate for planet earth:

There is plenty you can do to help your community, also.

  • Support local businesses as much as you can. Order online from them, get takeaway etc.
  • Check in with friends and family regularly. You may be surprised by who is struggling.
  • Offer to drop supplies off to an elderly neighbour’s door
  • Check out the local community page on Facebook and see if anyone needs assistance with anything. People regularly offer help and ask for it.
  • Arrange online meet-ups. You could have a theme, watch a movie together, or play trivia.

This is a discombobulating time. You don’t have to have it all figured out, nor do you need to give yourself indigestion. All you need do is care. Start with your little patch of the world and work your way out.

Anniversary in Lockdown

For 36 hours, I went into battle with a grown man. I was 15 years old. I attempted to outsmart him, trick him and survive him. I succeeded, because I’m still here. Through circumstances beyond my control, I met him when I was 14. Those months were marked off the calendar using my tears, blood and sweat…

The abuse had already begun, when this picture was taken at 14. Looking at the camera, I determined to say with my eyes “WTF has happened to my life!” This was long before WTF was even a thing. I remember exactly how I felt on this particular day.

It’s the anniversary of my abduction today. I recall the music that was played, the meal served (that I wasn’t allowed to eat). The orange glow of the radiator. The bars on the windows. The deadlock on the door… I had a finely-tuned penchant for dark humour. Once, I could manage to laugh, even as I watched my life be disassembled by adults, who should’ve been guiding, rather than destroying. My life force was strong and determined. I had done everything I could to stop this moment from happening. I was still doing everything I could to stop the ending being played out. I hadn’t given up. I would not give up. What was said to me and what I endured in that 36 hour period is unspeakable. Opportunities to escape were fleeting.

Tomorrow night, I shall remember that girl in the photo. I promised her, that if she survived, I would remember her suffering. I would hold her tight, keep her safe and rejoice in her survival. I was strangled to the point of unconsciousness. The agony of having someone stop your next breath; well, it stays with you. He thought he’d killed me and didn’t celebrate my resurrection. I was eventually found on the ground, within a pile of bark chips and dirt, blood sprayed over my face and head. He didn’t like it when I laughed toward the end and I couldn’t have cared less. No more pleading. He had no power over my mind, nor my spirit. He couldn’t capture nor contain me. I could control what I was thinking and feeling toward the end. He didn’t enter into it, at all.

Over fifty hours of surgery, years of hospitalisations, hundreds of physiotherapy sessions, scores of specialists, over $60,000 of medical bills, hundreds of scripts and an array of vibrant walking sticks later… I celebrate. The trauma never leaves. How can it, when you live with the scars and pain every day of your life? A few weeks ago, I was scrolling through my social media, when I dropped my phone in fright. On a friend’s page, a man who looked identical to him and with the same last name, stared back at me. He had commented on something or other, on my friend’s page. It turned out, that this is a close relative of my monster. Same last name and same face. He could be a very nice man; who knows? It brought it all back. They don’t tell a survivor how they should process events such as this. Forgetting isn’t an option, but rejoicing is.

I am in Sydney and the Delta variant of Covid has seen us locked down, alongside other states of Australia. I am as anxious and scared as anyone. I don’t want to lose anyone I love; I want this to be over. We must stick together; love one another and check in with each other. It seems counter-intuitive to rejoice as another anniversary skulks up on me, particularly during lockdown. However, it is the only way forward, not only for me, but for us. We must feel it all; the fear, the anger, the anxiety and horror, alongside the hope. We mustn’t let go of hope. Remember, the comfort of hugging a friend; of meeting up for coffee. The splendour of seeing live theatre or a movie. Attending art galleries and celebrating a happy event with loved ones. I dreamed of such things, that night on that ledge. I dream of them still. I grew up. I got to have a child. I got to have a life beyond what that 15 year old could envisage. Celebrating survival within lockdown, I allow myself to imagine what comes next, long after we as a society are freed.

You survived that which was set to kill you. As you light your candles, wrapping yourself up in a patchwork quilt; reflecting and rejoicing, you will also pay tribute to those who didn’t survive similar. You will reaffirm that your life is lived in honour of them. Your life is balanced on the mighty shoulders of thousands of such angels. You will live in their name.

On this day…

Trigger warning

I looked set to die on this date, a lifetime ago. I was abducted, held overnight, strangled, then thrown off a building. I was fifteen years of age. Before this event, I’d been a typical teenager. I jogged around my neighbourhood, roller-skated, hung out at the shops with friends, and thought anyone over 25 was ancient. Then, my life changed. No more high school; I began learning by correspondence. A life that was expansive, contracted in. I lost touch with all my friends. My world started and ended in my room. My daughter is soon to be 14, the age that I was when it all began. The thought of anyone hurting her; my little girl…I will keep her from harm, that is the solemn oath I’d whispered when I first held her as a newborn.  I still have sharp pieces of bone lodged in my spinal canal. It feels like I’m being perpetually knifed in the back. It alternatively enrages, saddens and fuels me to keep going. Today is a time for reflection and grieving. By the same token, it’s a time of celebration. I sat in my living room last night, and was overcome. Here I am, cosy inside my sanctuary. I cradled a hot cup of tea, my daughter and safety. That winter’s night, as I lay smattered in my own blood, this was what I was dreaming of. Now, it is mine. Everything I only dreamed of, pined for and craved, I now have.

Numerous surgeries, court cases, pain and healing have ensued. Here is what I’ve been left with, rather than what was taken.

  • I know what it’s like to survive an event that looked set to kill me; that in itself is a gift.
  • What is there to fear anymore, within this life?
  • I am in agony every second of every day, and yet still I rise. It’s not always easy, and nor is it pretty, but it is worth it.
  • I strive and I achieve. I would rather feel it; the ecstasy and the bleakness, than feel nothing at all.
  • I don’t obsess over the minutae of life. What does any of it matter, in the big picture?
  • The months I spent on a Stryker bed in a barren hospital room, made me crave colour. A fruit bowl brimming with citrus, or viewing the lavender and geraniums in my garden, fills my soul.
  • There is no time for small talk. All interactions are met with a sense of urgency and a need to delve deeper.
  • Nothing is taken for granted. I remember well, the months spent in body casts and the years in body braces. The glorious sensation of washing my hair and having that first shower, remains with me, and each morning I rejoice as I undertake this ritual. As for running a bath; it’s as decadent as it’d been after six months in a cast.
  • Bird song remains as sweet as when I heard a solitary bellbird from my hospital bed.
  • In this hour, I was being wheeled to the CT machine in the hospital. I recall tears streaming down my face, experiencing a sunrise I didn’t think I’d see. I still love dawn; the dappled light and promise of a new day.
  • My daughter greeting me with a hug. ‘Good morning, Mama,’ she says. Once, she’d been a beautiful dream; an apparition I saw regularly in my slumber. I still can’t quite get over the fact she is earth-side now. I have the Petrie dish she grew in as an embryo. Miracles and other wonders are intertwined within even the darkest of times.

With nothing left to fear (the worst has been done, after all), and provided with the warmth, food, security, family, colour and        freedom I’d craved on that lonely, bitter-cold night, I am content. I dared to dream within the 24 hours I was hostage. All that I dreamed of as a hungry, cold, isolated kid, has come to pass. Anything else that I’m gifted is a bonus.

Freedom’s just another word for nothin’ left to lose,’ Janis Joplin sang, and she was right.

International Women’s Day

My daughter and I went to a special event last Sunday, to celebrate International Women’s Day. One of the speakers talked about how she ended up homeless. In her career, she’d collaborated with some of our leading advertising people, and her children went to a private school. By all intents, she led a charmed life. She was active in her daughter’s school, designing scores of costumes for the school play. Nobody knew that she was sleeping in the store room after rehearsals, nor that she showered at the local swimming pool. They didn’t know that she camped out in the elements for the best part of a year. As was tradition, she was invited to luxury accomodation (free), in Victoria for a mother’s get-away. As she sat on the deck at sunset, one of the mother’s shared the disappointment of a postponed overseas holiday, whilst another complained about their maid and au pair. The dichotomy between her reality and theirs was too much, and she ran to her room. The mother’s sat in gobsmacked silence, with only one following to see if she was okay. In floods of tears, she confided that circumstance had rendered her homeless, and she didn’t know where she was going to go after leaving this place.

When this eloquent lady took to the stage, this was not the story I was expecting. We make so many presumptions about each other; what they do, who they are, and what they’ve been through. She had once hidden what she had survived, even from her inner-circle. Shame keeps us concealed. We don’t dare speak the truth of our lives. We have worked so hard to formulate an image, crafted from our happy snaps, holidays, career and family. What happens if it all goes to hell? Who are we then?

I must admit, when this lady first came on, I thought she was another upper-class motivational speaker. Somebody who’d lived a charmed life, trying to inspire us plebs to aim for her lofty position. When the reality of her recent past was unveiled, her one-dimensional image became one of real substance. She had been to hell, and was now determined to pull other women up. She had known hunger, and fear; panic and a lack of security. She wasn’t selling anything, other than hope. I imagine that was the only thing keeping her warm and sated during that tumultuous time. She now helps other women, who’ve found themselves homeless. By sharing her story, she has opened people’s eyes to the reality of this growing crisis, particularly amongst older women.

We need to be real with one another, and share not only our triumphs, but our pain. How exhausting it is, to have to wear a mask. It doesn’t serve us, nor society. We weren’t designed to withhold our truths, nor remain silent. Communion can only happen when we split open, revealing what had been concealed. You never know who you will help with the sharing of your story, particularly how you managed to claw your way out of hell.

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Entitled by Janelle Scott

I learned about Entitled via a friend who volunteers with Shining Stars. Apparently, the author was going to donate $5.00 from every book sold to this charity. As winter descends, Shining Stars is needed more than ever. They feed the hungry, provide essentials to the homeless, ensure people fleeing domestic violence have clothes and furniture, and new mothers have all they need for their babies. I could easily wax lyrical about all they do, wallpapering this blog, but you can read more about them on their website. I ordered a copy of Entitled, eager to help Shining Stars and also support the Author who was making such a generous pledge.

Entitled by Janelle Scott

 

Shining Stars

I could not put this book down once I started! How often have we been blasé to the homeless on our streets? How often have we pretended not to see them? If we avoid eye contact, we won’t have to engage with them. Children tug on their parent’s arm, to enquire as to why people have no home, and are shushed, then hurriedly moved on. The protagonist in this story is no different. If we create a chasm between them and us, it means that we don’t have to digest the unappetising reality that many of us are only a few pay slips, or a medical disaster away from the streets. We believe that they must have done something to create their situation, or didn’t try hard enough. It brings us peace of mind, that we are somehow masters of our destiny, and they are not.

I read Entitled in one sitting, thrilled that not only had the author nailed what it means to be destitute, but also what it means to be broken down then rebuilt. The people our heroine meets on the street are the truest friends she has ever had. They may well be the only friends she has ever had. I have seen homeless buddies run and fetch hot tea for another with the last of their money, or offer food and a blanket to a newbie. This is unadulterated love, something which Shining Stars has in abundance. Several societal ranks are featured in this book, with fate conspiring to have them meet, and learn from each other.

I give this book ⭐️⭐️⭐️⭐️⭐️

You can order Entitled from the following:

Booktopia

Janelle Scott’s webpage

To make a donation to Shining Stars, or to find out more, click here.

Starting Again

Hey you,

I know it doesn’t seem that long ago, since your last round of chemo/radiotherapy/surgery. You wonder if you have it in you to go another bout. You wonder if you can recover from this loss, and whether this divorce will destroy what is left of your heart. It’s one thing to sit up, crawl and stand as a baby, and quite another to start again as an adult. Way back then, a topple was a mere blip on your radar, and no matter how many times you fell, it only served to engage your stamina and your sheer strength of will.

Bankruptcy, marriage and relationship breakdowns, insecure housing, ill health and troubles aplenty, have brought you to this place, upon your knees. You have nothing left to lose, but also, nothing left to fear. The ghouls have descended then scurried, taking what was yours, and not leaving much at all. Peace of mind has gone, as is the feeling of being secure in this world. They have pillaged the treasure chest, their hands grabbing up rubies and emeralds, diamonds and gold. You have the dirt beneath your feet and on your knees, that is all.

You can’t abide thoughts of the road ahead, and how long and hard it shall be, before you are back where you once were. I have to tell you, you won’t ever be back there; you will be propelled somewhere better. We can never go back; we weren’t designed to. I remember when my spine was broken, and I foolishly believed that I would only have to work hard at rehab for a season. There would be a solitary surgery, to fuse all of the broken pieces, and then I would go on with my life, as though it had never happened. I don’t think I could have taken the knowledge that I would have to work hard on my body, year in and out, forever. That I would have many surgeries, and have to learn how to sit, stand and walk many times over. I don’t know if I could have tolerated the understanding that I would slide back to the beginning. What is the point of trying? What is the point of beginning, whether it be rehab, exercise, a new relationship or a business proposal, if there is a risk that you will put in all that effort, only to lose it all; to begin again. Perhaps, the point isn’t found in the finale, but in the effort. What you prove to yourself about your strength of character, and what you prove to others. What you find out about yourself, and the relationships you cultivate. Perhaps, these are all diamond days. Perhaps, when you are kneeling in the dirt, watching in despair as the ghouls make away with your treasure, you will find comfort in the fact that you are left, somehow alive, though bloodied. They can’t take you away. They can’t control your thoughts, nor your will. That is the greatest treasure of all.

So, let us begin again, knowing that the archer shall propel us forward, farther than we have been before. It is time to start anew. Let us begin…

Hope

How do we survive what life throws at us? It is miraculous, indeed, that a broken heart keeps beating. Hope is found in the friend who has retreated- missing from all social media-and  whom reappears after their dark night of the soul. It is the dawn we thought we may not see, and waking after major surgery that we were warned may kill us. It is the rescinding and rebuttal of bottles of booze and cigarettes after being warned of the inevitability of an early grave. It is continuing in the face of grief, and the exercise we partake in, despite wanting to stay in bed. It is a mindset that urges us to keep going, and keep alive, despite a downward turn in fortunes. Hope has no need for evidence, it is timeless and often without basis in facts. It stands alone, without anything to cling to, as ephemeral as a cloud, and as mighty as a gladiator. I have strolled through areas of Australian bush, which had been decimated by fire. Hope is found in the green shoots and new foliage on charred trees and scrub. You only need a small area which is undamaged to cultivate new life, it turns out. img_1550

You can have it all, and then lose it all. Enjoy today whilst it is here. The one thing that you cannot lose is yourself, a fine purpose-built instrument ripe for remodelling. Soaring above the decimation and loss is a feeling of hope; that you have it in you to rebuild. The hour is not too late, nor are you too old. We are somehow driven to grow in mud and rise from the ashes, again and again. Hold onto hope, no matter what circumstance you’re in.

Stay…

Last week, Sydney lost a talented chef to suicide.  Bronzed and seemingly healthy, his smile could light up our city. There was much commentary after the news hit social media, but what pierced through the rhetoric was the notion that when alone, he’d fallen into a worm hole, and hadn’t the resources to stave off the impulse his depression looped into. These holes seem to have no end, and can be hard to extricate oneself from.

I know a person who was close to succumbing, in January, 2019. There are as many pathways into anxiety and depression as there are people in the world. Hers wasn’t initially caused by a chemical imbalance, rather circumstances conspiring against her. It were as though her mind were a strudel, with layers of pastry piled on top of one other. The apple promised sweetness, and she held the layers of stress in her hands, waiting to reach the filling. All it took was another day of calamity- not of her making- to break her resolve. Heart beating wildly, hands shaking and a mind unable to see a way out, she reached for the phone. Once a playdate for her child had been arranged, and she was alone, her mind led her onto a dark stage. There was no audience, nor were there lights. There were no solutions here.

She had done all that she could to make life better, more secure, and she couldn’t see her way clear. All of a sudden, a beam of light hit the centre of her brain, insisting that she send a text. She asked what her friend was up to, and if she may join her. “Of course!” came the enthusiastic response. They drove to the beach, singing along to the radio. She made herself focus on all the beauty surrounding her. The Bird Of Paradise, alongside hibiscus, in reds and oranges,  dotting the landscape. She closed her eyes and felt the salt air caressing her skin. Her bottle of chilled water felt good as it hit her neck, the Cheezels they had bought, decorating her fingers like rings. She had gone against her wildest impulse, which was to not experience anything at all. It had frightened her, how her brain insisted that the stressors couldn’t be balanced against beauty.

They were gone for hours, away from home and everyday life. She was dropped back revived, just in time to make calls and forge a path through the thorny brackets of which she had been stuck. The next morning, she woke at dawn, and saw something similar to this.

Morning light and lorikeets greeted the new day, alongside the help needed to extricate herself from overwhelming concerns. Within a month, she had begun a new medication. It was a small dose, but enough to chase away the anxiety she had been battling alone, without armour. She could now see her way clear, and a path opened up in front of her. Happiness returned, and she started to engage with the world again. To her amazement, she had been missed. Depression in an active state is renowned for the crap it feeds us. Looking back, she shudders at what she would have missed, in just a couple of weeks. The mundane joy of a cool change after stifling heat, through to her child’s laughter.

She hadn’t the language in her distressed state to tell her friend what the matter was, nor what she needed, other than to be with someone. Perhaps that is all one needs to do; to reach out and say that you need company, even accompanying them as they go about their errands. Anything to not be in alone, battling a pocket of despair by yourself. A wormhole is a tunnel with two ends. Perhaps reaching out to those on the periphery is a way of ensuring we make it back to life. Look out for those self-isolating or who seem to be going through changes. Our psyche can be as fragile as a butterfly wing, and whilst it is tempting to cease all that has ever given us joy, it is imperative that we don’t. The lies our minds feed us tends to be done in secret and when alone.  You are too precious, and life has too much beauty left to unfurl. Let today mark the beginning of us all leaving our particular pockets of despair. If you survived today because you decided to go grocery shopping with a friend, rather than stay by yourself, then that is a miracle indeed. Whatever it takes to keep you alive, do it.

Frida, Tomatoes and Giving Pain Meaning

I had a hard time holding my newborn. When I was pregnant, I practiced carrying  a string bag filled with oranges, and a sack of potatoes. Weights and hydrotherapy also played an important role. When my daughter came along, I found it very difficult to hold her, and wrangling her as an active toddler was a challenge! Breaking my back again when she was three, saw me unable to carry her; even navigating a roundabout in the car would see me bite my lip to avoid screaming in agony.

I am a planner and think a great deal of the future. I guess when one has had so much out of their control, you grip onto that which you can have power over. My spine is a case in point. Working with weights each day and walking are things I can do to prepare for the future. I had researched spinal cord stimulation, and sought experts in this particular field. I was excited about the prospect of being able to cope as my back pain became more challenging (the fusion sites are already wearing out with age). I was so young when the damage happened, which means that preparations and reparations have to be considered now. I thought of my daughter as a teenager and young woman. I want to travel with her, and maybe one day be a hands-on grandmother to any children she may have. I want to be able to hold those babes in my arms. Unfortunately, a site of major damage is the thoracic region. Holding anything in my arms is agonizing. For a year, I harboured hope that spinal cord stimulation would help. It was to be my insurance policy; a nod to the next decades of life.

Last week, my daughter and I saw Evita at Sydney Opera House. It was a spectacular production, which left us spellbound. Tina Arena as Eva Peron, was stunning, and deserved the standing ovation which she received. My girl asked lots of questions about Argentina, and we researched it’s history online after we left. We stayed in Sydney overnight, having a leisurely brunch before seeing my spinal specialist. Armed with my latest test results,  I followed the doctor to his rooms, unaware of what was to come. I assumed we would be arranging to have a trial device implanted.  Spinal stenosis and fibrosis at the site of former surgeries meant that there isn’t adequate space to weave the wires through. I can’t even have epidural injections to manage the pain. Having surgery to place a stimulator would be far too hazardous, as it turned out. It was a lot to take in. It means I have to reimagine my future, and my daughter has to reimagine hers. Simple things like sitting or carrying luggage, going on long treks or long-haul flights will be that much more difficult.

I went home and cried. I watched the movie Frida, as I laid on my Frida cushions. It will be a reimagined future. I am doing everything in my power to keep my bones and muscles, kidneys, lungs and mind strong in preparation. There will be no hope of relief nor reprieve from the merciless pain. It shall always be there, a constant reminder of the brutality of my youth. It will limit what work I can take on, and how far I am able to drive. I will be damned if it limits what I can do with my daughter. She stubbornly took my suitcase off of me the other day, on our way to our hotel room, giggling as she ran ahead, despite my protestations. She reaches out her arm to me, and carries my backpack on her strong shoulders each and every day.

 

We shared the bus ride to RPA with an eloquent middle-aged gentleman who was homeless. He was Italian, and ate a tomato as though it were an apple. He reorganized his bag, and when he stood, he rolled deodorant under his armpits, before gifting the family opposite a drawing. He read a book on philosophy as he sat back down, finishing his tomato with relish. As we departed, he tipped his hat. I would love to know his story; I’m sure it is brimming with pathos and triumphs. The most remarkable stories are.

I have always been fascinated by birds, butterflies and dragonflies. How wondrous it would be, to have wings. For over half my life, I have been fused from my shoulders down, with  limited range of movement. I am grateful that I have been able to walk, and if my mobility were to cease tomorrow, there would be no lamentations. I just want (and need), to be well enough to see my daughter through to her adulthood.

For a moment, I regretted the time and money spent seeing specialists and having all of the tests done. What a monumental waste of a year! Then there was the matter of the space all of this took up in my brain. I had put things off ‘until after I had the device fitted.’ Ironically, as I reflect, I see that these days had only brought my daughter and I closer together. We had stayed in the city, walking and laughing in the rain. We brunched and cheered on street performers. We had been together, smart phones displaced from our hands. I found myself outside the Downing Centre courts, a place I had avoided since the court case I endured at sixteen, trying to get a bad man to pay for the vile things he had done. I stood outside for fifteen minutes, waiting for our bus. Lost in my thoughts, the Italian gent, tomato in hand, tipped his cap and we talked. Mental illness had robbed him of a lot, but not his heart. Physical injury had robbed me of a lot, though not my heart. For a moment, we were in simpatico. He gestured for my girl and I to board the bus before him, and I glanced out the window at the imposing courts. I had come back to retrieve that girl.

Perhaps, none of it was about a spinal cord stimulator. Perhaps it was to give me leave to spend quality time with my daughter. Maybe it was also about facing another piece of the past. Maybe it was to show me that I can organize travel and hotels and that I am enough for my daughter. I am the mum that she needs. Perhaps it was to affirm that I need to let go of fear. The worst has come and gone and I am still here. Maybe I was meant to meet the Italian fellow, and be encouraged to eat vine-ripened tomato’s as though they were apples. He even ate the stem, and I realized that nothing is ever wasted. The same is true with lives.

I have been referred to a physical therapist, and my specialist is going to review my case at the next practice meeting. As I reflect on the year gone by, I see no wastage. My daughter and I had experiences we would never have had, and seen parts of Sydney that we wouldn’t have. We have met magical people, been in magical shops, had magical food and stepped out of comfort zones. The only thing left to do is eat a tomato as though it were an apple.

 

Happy Birthday, Raphie!

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The anniversary of my fall happened recently. I consider the date to be my actual birthday. It could have been the end date between the dash, stating when I was born and when I died. If he had his way, it would have been. I have done everything I could think of to get through this particular day. I recall one year, I visited a dentist, and wept uncontrollably in the middle of Bondi Junction afterward. It was only when I looked at a newspaper, that I realized it was the anniversary of the fall. It convinced me that we have a powerful subconscious reaction to anniversaries, even if we don’t consciously dwell on them. This year, I took my daughter to lessons by a beach. On the bus, a brilliant stream of sunshine pierced through the windows, bathing me with soothing honey and saffron light. I closed my eyes and smiled, just as I had done the morning after the fall. Sunlight had broken through the clouds, and reached its honeyed fingers through the hospital window. Tears poured down my face at the sensation.

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I sat on the beach whilst waiting for my daughter and watched the waves crash in and then be pulled back. I was asked to hold close the following in the aftermath of my fall; ‘It came to pass…not to stay.’ For years I had imagined the waves crashing in, and then receding, taking with them all the challenges and pain. It was a marvellous saying, and an inspired piece of imagery.

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There were many ways I could have died that particular night, and he spoke aloud all the possibilities. I was strangled into unconsciousness at one point, before being pushed after I regained consciousness. I was then dragged across the ground, my survival having been an affront to him. The people on the waterfront looked at me curiously as I grinned maniacally from sheer joy, incredulous that I am still here. I talked to strangers, and patted little dogs wearing winter coats. I pulled out my key chain; I had found the perfect reminder for this date.

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I spent the rest of the evening looking through old scans, deciding what to take to my appointment at a pain clinic. I was of course, asked what had happened, and my throat grew dry as I revisited the trauma, trying to provide a recap in an hour. It is a saga that goes on, year after year. It demands time spent in surgeries and in surgery. Doctor’s surgeries tend to have the same inane and dated sporting, golfing, automobile and real estate literature, though if one is lucky, you may come across an old Reader’s Digest. I find it all laborious and tiring, and frankly can think of a million better uses of my time. However, I have an eleven year old daughter to whom I am the epicentre of her busy world, and I need to be on my game. I have to think of the future, and all I want to do with this kid. Spending time and money to maintain the wonder that is this vessel; well, it has to be a priority.  On a positive note, I have reached the Medicare Safety Net for the year! Go me! My daughter and I were having a girl’s night recently, and she tried to teach me some of her dance moves. She did so slowly, and we were in fits of laughter at my uncoordinated efforts, until I fell to the floor in pain. She kept apologizing and my heart broke. It is always there, demanding to be acknowledged. Each time I require my girl to do things I can’t do without extreme pain. Each time I have to explain how I was injured.

After my daughter bid me goodnight, I did what I do most years on the anniversary. I poured a glass of red wine, lit a candle and wished myself a happy birthday. It is always a birthday party for one. That bitterly cold evening, I imagined I was covered in a blanket, a pillow underneath my head. I imagined I was safe. I sipped my wine, then blew out the candle. I tucked myself in, and fell asleep. Another year passed.

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