Starting Again


Hey you,

I know it doesn’t seem that long ago, since your last round of chemo/radiotherapy/surgery. You wonder if you have it in you to go another bout. You wonder if you can recover from this loss, and whether this divorce will destroy what is left of your heart. It’s one thing to sit up, crawl and stand as a baby, and quite another to start again as an adult. Way back then, a topple was a mere blip on your radar, and no matter how many times you fell, it only served to engage your stamina and your sheer strength of will.

Bankruptcy, marriage and relationship breakdowns, insecure housing, ill health and troubles aplenty, have brought you to this place, upon your knees. You have nothing left to lose, but also, nothing left to fear. The ghouls have descended then scurried, taking what was yours, and not leaving much at all. Peace of mind has gone, as is the feeling of being secure in this world. They have pillaged the treasure chest, their hands grabbing up rubies and emeralds, diamonds and gold. You have the dirt beneath your feet and on your knees, that is all.

You can’t abide thoughts of the road ahead, and how long and hard it shall be, before you are back where you once were. I have to tell you, you won’t ever be back there; you will be propelled somewhere better. We can never go back; we weren’t designed to. I remember when my spine was broken, and I foolishly believed that I would only have to work hard at rehab for a season. There would be a solitary surgery, to fuse all of the broken pieces, and then I would go on with my life, as though it had never happened. I don’t think I could have taken the knowledge that I would have to work hard on my body, year in and out, forever. That I would have many surgeries, and have to learn how to sit, stand and walk many times over. I don’t know if I could have tolerated the understanding that I would slide back to the beginning. What is the point of trying? What is the point of beginning, whether it be rehab, exercise, a new relationship or a business proposal, if there is a risk that you will put in all that effort, only to lose it all; to begin again. Perhaps, the point isn’t found in the finale, but in the effort. What you prove to yourself about your strength of character, and what you prove to others. What you find out about yourself, and the relationships you cultivate. Perhaps, these are all diamond days. Perhaps, when you are kneeling in the dirt, watching in despair as the ghouls make away with your treasure, you will find comfort in the fact that you are left, somehow alive, though bloodied. They can’t take you away. They can’t control your thoughts, nor your will. That is the greatest treasure of all.

So, let us begin again, knowing that the archer shall propel us forward, farther than we have been before. It is time to start anew. Let us begin…

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Bob Hawke dies: 1985 letter from then prime minister to little girl


The 34-year-old letter has evoked strong memories for the then little girl he wrote to about the mystery of death.
— Read on au.news.yahoo.com/bob-hawkes-touching-letter-to-little-girl-after-grandmas-death-231015109.html

For those that have been Betrayed


I see you, even though you feel invisible. You are trying desperately to hide, even whilst yearning to be found. I sense the psychic wounds; the blood-letting you have endured. You are surrounded by pretty photos of pretty times by pretty lakes. There were pretty hotels in pretty, faraway lands. You have retreated from Instagram and Facebook, feeling you have nothing to contribute by way of pretty stories… Not anymore.

You had hoped that none of this was real. It can’t be real, for that would be intolerable; unthinkable. Your heart is pierced with wire, barbed and cruel, another searing pain striking whenever you think of him, and what transpired.

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Pain that sees you crawl into a ball in the shower, undone by wracking sobs which seem unworldly. What to do with the pictures, strewn about your home? The albums filled with memories? Hell, you even learnt the art of scrapbooking, so the stories were inked on pretty paper, in an orderly fashion. Each chapter had it’s own album, as great stories should.

I can see your collarbone, your flesh receded, along with your appetite. When did you last eat? I can see you haven’t slept, your eyes hollowed and red.

Next we have anger. Why didn’t you see it coming, you rage at yourself? Why did I believe their lies? Why did I think it was possible to retrieve our life together? It was concealed from you, dear heart. They only reveal what they want you to know. Lying is a game for one, and you weren’t privy to the rules. Anger extends to the partner. How could they take your family and carelessly shatter all that you had? They aren’t there to deal with the aftermath.

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I see you trying to adapt to being a single parent, and a single person. I see you having to navigate the legal system, locate counselling, and deal with financial matters. I know it feels overwhelming. The evenings are lonely, but then, so are the mornings. There shall be many firsts. The first time you attend a dinner, where you are the only one solo amongst your friends. The first walk, the first Christmas, the first mothers day…

There will be immense sadness and there will be grief. You wonder if the whole of your relationship was a lie. How much of it was ever real? Hindsight is a cruel teacher. It is only through it’s looking glass that we are able to see the complete picture. How can they love you like you need and like you deserve, if they don’t know themselves? If they came to you as an incomplete person, the union had to break. You aren’t responsible for filling up the mental and emotional needs of a partner who is punctured. It isn’t your job.

Your job is to tend to your own wounds. To discover the simple pleasures of a bubble bath or a solitary stroll. The kids are at sleepovers and you are alone. Now is the time to discover how decadent it feels to prepare a nourishing meal for one. You can curl up with a novel, or Netflix, unimpeded. You can play whatever music you desire. You are free now. Free from betrayal, and from the years of subterfuge. No more deceit, and no more wondering. You are worth far more. Now it is time to heal.

Go gently into your new world, and lean on your inner circle of friends. Slowly, you will begin sleeping through again. You will start eating more and cry a little less. You are going to show this world what a single woman can do. Right now, if all you did today was  go through the cycle of bewilderment, denial, anger, hurt and sadness on a continual loop, you did okay. You are still here, and have much to build on.

Remember the young woman who lived before this relationship? Open that photo album. Find her, retrieve her and offer her revivification. She has been there all this time. What does she want? What did she sacrifice or put on hold? Take all her dreams out of mothballs, and bring them to life.

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Learning from Toddlers


Hopping onto a full carriage at Central station, I was cursing myself for arriving in peak hour. Tired and hungry, I stood next to an equally exhausted lady, who grimaced by way of a greeting. People left at the next few stops, and a mother with a stroller boarded. That is when everything changed. I hadn’t noticed the mother and little boy before, seated in the middle section. The little boy stood as I found a place to sit, and wandered over to the stroller, greeting the little girl with  unadulterated joy, as though they were old friends. After he introduced himself, the little girl’s mum was offered a seat by a building worker. He actually insisted. The little girl was let out of her stroller and the kids sat snuggled together. I watched as their rapport was built, sharing toys and French fries.

The lady I had been standing with smiled knowingly, when she heard the mothers describing how hard new parenthood had been, and how they had been certain they were screwing it all up. Parents of older kids chimed in, and told their own stories. We confessed all the things we vowed to never do with our kids, which we all did. We talked of our own battles and what we had learned through the years. I laughingly relayed that I had vowed to never feed my toddler chips, and stories were told about all the silly rules we had administered, pre-children. Banana sandwiches are great, but then so is the occasional bucket of chips. Pretty soon, the whole carriage was chatting, introducing ourselves to one another. The toddler’s energy and ease of friendship had contaminated us all. They alternatively sung Wiggle songs, played with toys and ate chips.

An hour passed, and it was time for the toddlers to say goodbye, and they hugged one another. I thought of the ease in which the little boy had gone up to greet the little girl. It had brought out the best in all the weary travellers. It taught us to get our noses out of our phones, and actually smile at one another. Even if you are only going to be with a group of people for one solitary hour of your life, make it count.

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Phone Etiquette


Every time you ask a query online, you seem to have to put your mobile number in the contact form. I have tried to get away with not entering it, but the page won’t let you proceed until you do. I was recently enquiring about further education, and contacted around twenty institutions. Imagine, twenty places, all trying to call you, each and every day. I kept missing the calls, and we played tag-team. I  pleaded for them to email me the pertinent details, rather than insist on talking to me. I simply didn’t have time for all the calls.

There are many reasons why answering the phone may not be possible.

  1. You are using your mobile to navigate with Google Maps, and the phone dips out whenever a call comes through.
  2. You are a migraine or Trigeminal Neuralgia sufferer, and answering the phone during an attack is not possible.
  3. There is thunder and lightning about. I have had people that I love suffer electrocution during storms, so keep well away from my mobile as soon as the clouds gather!
  4. The phone is charging in another room, and you forget about it.
  5. I am early to bed and early to rise, and have programmed my phone not to ring after a certain time of night.
  6. You are working or studying, and  haven’t the time to hold a phone conversation.
  7. You are driving or otherwise travelling.
  8. You are at the theatre, cinema or enjoying the arts in any capacity.
  9. You are spending quality time with your child.
  10. You need time to relax.
  11. Calls coming from unscreened numbers make you nervous.

These are just some reasons off of the top of my head! If I didn’t email and text, and spent every day with the phone to my ear, I wouldn’t get anything else done.

Caitlin Fitzsimmons investigated this issue in the Sydney Morning Herald. Do you agree that phone calls are disruptive? Wouldn’t it be easier to text a message, rather than play a tiresome game of tag?  I use my mobile to get around the city, take photos, look at my emails, and shoot off a text. What is yours primarily used for?

Pain and Anxiety


When I first read about Jo Cameron-the ease in which she moves through the world- I envied her. Imagine not being woken by niggling fears surfacing at 2am? What a joy to not suffer anxiety, nor terrors, from real or imagined foes! As for aches and pains, imagine not suffering with any? How liberated would you feel?

 

Jo Cameron was interviewed in the New York Times recently. The potential for her genes to be studied, so that pain and anxiety in everyday patients may be diluted, is a tantalising prospect. It may result in the ability to demand that a certain gene calms the hell down!

 

Along with the obvious advantages to living as Jo Cameron does, there are also disadvantages. I have told my daughter to be aware of that feeling in the pit of her stomach, that relays whether a situation or person is giving off good vibes, or not. Are they making her feel anxious? It is a sense that over-rides all logic, and hence doesn’t involve the brain, as much as the gut. I have told her to always honour that feeling, and have promised that I shall too. Imagine if we didn’t have any warning of danger? No rapid heartbeat, sweating, nor adrenaline in overdrive? There can be good stressors, which pivot us beyond what we believed were the limits of what we can endure. Studying, exams, public speaking. Anxiety can be used as a helpful resource, and not a hindrance in these cases.

When I went into labour, I thought they were mild contractions, involving my lower back. Compared to endometriosis pain, it was a walk in the park! The back pain grew worse, which saw me agree to finally go to hospital. It turned out that I was in full labour! If I hadn’t had the back pain, I would never have known. Every segment of my spine is damaged. There are bony spurs growing on my neck, all the way down. My spinal canal is narrowing, leaving little room for the nerves. I am sometimes out of my mind with the pain, and as a seasoned pain-sufferer, I often welcome it. It gets so bad that my brain packs an overnight bag, and we escape the minutiae of everyday life. I laugh more heartily, dream more vividly, and write more eloquently than I would have done.  I appreciate the spider senses in my solar plexus going into overdrive if confronted with danger. The same goes with my hand retracted from a steaming cup, before being scolded.

It would be lovely to have the ability to adjust the settings on anxiety and pain, without turning them off completely. Perhaps, Jo Cameron holds the answers we have been seeking.

Budget 2019


The contents of the Australian Budget, 2019, struck me as being staggeringly cruel. No money for housing, funds pulled from the NDIS, TAFE stretched thin and services unable to cope with demand. There was no celebration in my household last night.

Doctors are campaigning for a Trauma Recovery Centre to be established. This and other incentives would have been most welcome!

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I know of families trying to access funding for their children, and being kept waiting in no-man’s land. They aren’t as yet funded for all the treatments their children need and deserve, and aren’t eligible for any other help whilst their claim is being processed. It is a long, excruciating and expensive journey.

I was referred to a support service, who have been trying to help me access the NDIS. I mentioned that I was diagnosed with complex PTSD many years ago, and have been battling alone, unable to locate adequate services. An assessment was organised, the doctor agreeing that indeed I had complex PTSD. He made the error of remarking that I am coping well, considering the amount of trauma endured. I was informed that this assessment had been knocked back, and I would not be funded for specialised help. No matter that I experience flashbacks on a daily basis, and that I have nightmares each night.

An appointment was made with my doctor, and a case worker was scheduled to accompany me. I had to ring the NDIS to ask that they email the access request form for my doctor to fill out. I tried for two days to get through, without any luck. Yesterday, I nearly fell over when my call was answered. I explained the situation, and asked that they email me the appropriate form. The operator told me that he would put me on hold, whilst trying to track down somebody to help. Eventually, he came back on the line and said that he was unable to rouse anyone in the department, and that it was highly unlikely that they would respond to the memo in time. The case worker had to cancel the appointment with my doctor. This support service are trying to help me access funding due to my spine. I spend around $120 a week on catheters alone, so am in need of assistance!

Newstart

The unemployment benefit called Newstart has not gone up for 25 years! It is well below the poverty line. How is one to keep their phone on, buy food,  pay rent and afford travel and clothing for job interviews? A friend of mine has major physical limitations and has suffered unspeakable cruelty in her married life. Instead of being a lifeline, Newstart has made her stress about the $50 she has to spend on medications each week.

I have another friend who had to give up her job in November. Her specialist insisted, saying that she would never be able to resume work. He promised to help her by filling in reports so she could get onto a Disability support pension, which is a much higher rate than unemployment benefits. Her medical treatment has been all-consuming and brutal. Four months after she applied, her application for a Disability Support Pension was denied. Devastated, I accompanied her to Centrelink. The staff member was lovely, and one could feel their frustration at not being able to help. My friend-who is a single mother-has had no income since she had to give up work, and because she still had a small amount left in her savings account, she was told that once she had burned through that, her application for Newstart would be expedited. She is now on Newstart, which is just enough for a little bit of food and her rent each fortnight.

Housing and Domestic Violence

I have a friend who was forced to flee her marital home with her children, and ended up living in her car for a time. Here is the experience of many women.

  1. Locate a local service, and turn up desperate, pleading for help. You have no money, you are already battle-weary and the kids need emotional support.
  2. The service promises to help, but they are stretched to breaking point. Even getting your child into specialised counselling means hopping onto a waiting list for a year. Your child- who was ready to open up and talk- has closed down in the interim, and the opportunity has passed by the time their names are at the top of the list.
  3. You go from service to service, all wanting to help you start anew, but unable, with their limited funding.
  4. You learn of a scheme wherein your rent is subsidised for a year or so, whilst you get back on your feet. Unfortunately, there are strict guidelines you must adhere to, including locating a property with a tiny rent attached. There is nowhere in your area, nor near your child’s school at or under this price.
  5. The public housing waiting list stretches to 60,000 people. The chances of you and the kids being offered a property in the near future is remote.

A friend of mine applied to have security cameras and other measures put in place at her rental property. The funding was finally approved, and the company came out to instal the devices. Pulling up the paperwork, they told her that it was an old quote, and as it had taken so long to be approved, their prices had gone up. She would have to reapply and start the process anew.

TAFE

On a personal note, I made contact with NSW TAFE, and was told that I could apply for a concession for the particular courses I was keen on. Excited, I arranged a loan to cover the deposits, and called up to enrol. TAFE apologised, and said that at this time, they were unable to complete my enrolment, as their system was having issues with Centrelink. I have the amount for the deposit in my account, and am eager to begin, but at the moment, can’t proceed.

There are many families and individuals in the same predicaments as above. I wouldn’t have thought that the ability to fund one’s education, have a stable place to live, be able to afford medications and support, and to feel safe, would be requests deemed frivolous. Don’t even get me started on the necessity of having dental work included in Medicare!

Joy wasn’t found in last night’s budget. I hold onto the miracle that is found within the human spirit, which can somehow survive setbacks and knock-backs and frustrating delays. I hold dear the resilience contained in a battle-weary person, who gets up each day and dares to hope.

Invisible Women


Invisible Women is an astonishing book by Caroline Criado Perez, that reveals how our modern world is tailored to the needs of a caucasian male. Check out this Bustle article!

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We had a cold snap in Sydney last week, and a friend of mine tweeted that ladies should head to the menswear section to locate flannelette pyjamas. Not only are they $10 cheaper than the women’s version, but they have pockets! Outrageous!

Western society is geared toward providing comfort and ease for the token ‘average’ caucasian male. If you don’t fit this demographic, then it’s bad luck! It reaches into every portion of life. Don’t believe me? Why are women’s haircuts, clothing, shoes, luggage, eyewear, etc, so much dearer? Girls are not entering STEM fields at the same rate as boys (women only make up 16% in Australia’s STEM fields). SAGE (Science in Australia Gender Equity), has also thoroughly researched the topic.

Now onto a different (though related) topic… I have uncovered my new heroines, courtesy of this Washington Post article. A group of teenage girls discovered that their looks were being rated by some of their male counterparts. What happened next was not only brave, but ultimately cathartic. It was transformative for the young women, who found they were  heard and respected. It was as valuable for the young men, who finally understood the hurt and humiliation their actions had caused.

If only we could transform the prototype of the average caucasian male, of whose comfort society is built for.

 

 

Naked Bike Ride Sydney, Parrots and Friends


As a result of a recent slip and fall, I have had to take more pain medication for my spine.   Come Friday, I was hunched over my toilet, continually throwing up (this medication can interfere with the nausea centre of the brain). As a result, I missed seeing my daughter sing at her Highschool’s talent quest. It was the end to a stellar week, which saw us being notified that our darling little home was being sold. We are hoping with all our hearts that an investor buys it, and we are able to stay. Saturday was spent eating dry toast and apple to settle my stomach, and resting in bed. That evening, my girl and I watched a very silly movie, and laughed until tears streamed down our faces.

We had arranged to meet friends on Sunday in the city, and there was no way that I was going to cancel. We all did IVF together, ending up with daughters. We hadn’t seen each other for the longest time, life getting in the way. It were as though no time had passed, as we hugged and caught up. IVF had taken a lot out of us, but it had also given us an inner resilience. Boy, have we needed it!

Strolling along, we came across a very sweet man, who was walking his three dogs and his Eclectus parrot. The girls were invited to hold him, much to their delight!

This gorgeous boy is named Apollo, and you can follow him and his family on Instagram.

Light exuded from Apollo’s dad; he was one of those people of whom you leave lighter and much happier.

We had Italian ice-cream for brunch, then indulged in a gorgeous Earl Grey and rose donut, baked fresh. A long walk was in order afterward, and we found an eatery, where I ordered a zucchini flower and plate of Brussels sprouts, pan-fried in balsamic vinegar. Surprisingly, my friends asked that the surplus be put in a container for me to take home,  and were more than a little reluctant to finish them off!

The girls paddled in the harbour, and as we reclined at a nearby park, we were surprised to have the Naked Bike Ride, Sydney, stream past! A helpful fellow at the front, announced to the gawkers that they were indeed nude riders, as if we couldn’t figure it out for ourselves! I admired their chutzpah, and the whimsy of it all. Such a random event to come across! It certainly made everyone smile!

At the end of the day, I was tired and sore, but no more than I would have been had I stayed home. In fact, I would have been worse off. I wouldn’t have seen my lifelong friends, watched my daughter have fun, met a very kind man with his canine and bird family, eaten glorious food and seen the naked bike ride. I wouldn’t have been embraced by my glorious city. I love that I can go into the city depleted, and come back retrieved.

Scoliosis


When I was in Primary school, the Government funded a scoliosis screening program, to pick up worrying curvatures early in a child’s life. At the time, I passed the screening with flying colours. Then, I broke my back. A few years later, after numerous surgeries, I was informed that my hip graft had failed, and I had scoliosis to such an extent that my heart, lungs and stomach were being crushed. Without major surgery, I would die. I was seventeen when I went into hospital to have this surgery. I had previously spent two years in a body brace, which unfortunately couldn’t save my spine, as the problem stemmed from the grafts failing. They at first opened my chest, somebody holding my heart whilst ribs were removed for grafting and put in via the front. Then I was turned over, and they operated on my spine, installing Harrington rods, screwed into place. I was later put in a fibreglass body cast.

 

 

My scoliosis was rectified enough to save my life, but the rods had to be taken out at twenty, and later fractures in my spine have seen the scoliosis worsen. I live with a monumental amount of pain now.

I worry when I see kids slouching, quite often unable to sit up straight with shoulders back. I am also concerned with the weight young people carry in their backpacks to and from school. It is as though they are carrying bricks around! It is essential that scoliosis is discovered early, before long-term damage is done, and requires surgery. It affects future pregnancies, the work you can do, and your general wellbeing.

My friend’s daughters were diagnosed early, and whilst they require bracing for a few years, they shouldn’t need any treatment beyond that. My friend has set up a petition, to urge our government to bring back screening within our schools. If we can prevent even one child from enduring hell later on, it is worth it.

You can sign the petition here.