Remember how I wrote about my friend and her admittance to hospital? Well, she came to my place after having pathology done, and over a cup of tea, there were many tears, borne of frustration and overwhelm. She works as a casual with the elderly, and if she doesn’t work, she doesn’t get paid, so she has had to pick up as many shifts as she can. The specialist who ordered her scans wanted them done before the end of this week as he is going away on a conference Friday for two weeks. She tried to book in, and found that she will have to wait a month! Three sections of her spine shall need to be done as well as a brain MRI. She knows that her symptoms are a sign of something amiss, and as you can imagine, is desperate to find out what. It seems incredibly cruel to make a person wait for answers when they still have to work and somehow function in the interim.
She missed a call from her GP the other day as her phone dips out where she lives. She was let out of hospital with a severe headache and many symptoms to fend for herself. By prolonging diagnosis and treatment, the health system actually loses money. It makes no sense! It was made clear to her that if she was willing to pay for the MRI’s, she could have them done immediately. Unfortunately, she doesn’t have the thousands of dollars this would necessitate. Being in a private health fund means nothing in this circumstance. It shouldn’t be this way. My job as her friend is to help keep her spirits up whilst she waits.
A friend of mine almost lost her life as a teenager when she came down with Guillain-Barré Syndrome. It has left her with long-term problems, which saw her admitted to hospital a few days ago. She was due to have an MRI so the doctors could gain an understanding as to what was happening neurologically, but at the last moment, it was cancelled, much to the frustration of both my friend and her specialist. It was a Friday afternoon and radiology had a backlog. She ended up being discharged, and asked to make her own arrangements for the MRI and a nerve conduction test. Now this lady is a single mother with no family support, and lives quite a way out-of-town.
This scenario seems to be common in the Australian health care system, and one can feel overwhelmed, attempting to deal with it all alone. Ideally, these tests would be done in hospital, and once the specialists know what is going on, the patient would be sent home with that knowledge, and hopefully ongoing support.
It is incredibly confusing, navigating our system! On the one hand, pathology may be free when requested by a GP rather than a specialist and on the other, scans may be charged when requested by a GP rather than a specialist. If attending appointments alone, you are likely to forget to ask pertinent questions, and incredibly likely to not retain important information. Having an advocate with you is important! I would like to see a system where the person is asked before discharge what support systems are in place when they get home. How far from town do they live? Do they have transportation? If the answers are in the negative, keep them in hospital to have the tests done in-house. My friend works incredibly hard, and I have been worried about her health for some time. Instead of having answers last Friday, she has been left to organize the tests herself, with a lengthy wait in the interim. We need a better system than the one we have.