Thankyou so much for the support! It has meant the world to me! It has been a very busy week here! I took my daughter to see an excellent documentary on conserving our reefs at the IMAX Theatre. If you are in Sydney, you have to see a documentary here! They give you glasses which only work at IMAX, and you feel as though the animals are reaching out to you. It gave the kids a clear idea on what is happening to our coral reefs, and how we can help thwart the damage being done.
I saw a friend in hospital, and it happened to be one I had surgery in at seventeen. I got completely lost, and ended up at the ICU doors. I stood there for a moment, remembering how I fought to keep my lungs inflated. How I fought for my life. There was joy and pride in the remembrance. The hospital looked so little compared to how big it had seemed. Due to a skilled surgeon, my life was saved. It is bizarre; I have met so many people this year who had been operated on by the same doctor! We have our own little fan club going! He is now retired, much to our frustration. He was a genius.
There have been art and science classes, as well as drama, leaving little time to plug away at my manuscript. It will get there, slowly but surely. I have a time frame and am determined to reach it! Home schooling my daughter is one of the greatest joys in my life. I believe that every life has a season. As she grows, I wont be needed quite as much to help with her lessons. I will have so much time when she turns eighteen, that I shall be able to write a hundred books! She is only this young for such a short while.
We are experiencing a very hot March, even though we are meant to be in Autumn. There are still some beach days left in Sydney!
We have a full house this coming week, with a few precious ones staying. I have stocked up on snacks, wine and games. The birds have been told to be on their best behaviour! May you all have a wonderful weekend.
I can’t tell you how much the response meant to me after I posted Til it Happens to you. The support was incredible! I was too overcome to respond for a while. People have asked how I got through it all. I suffered status epilepticus at 13, meaning I had continual seizures which couldn’t be controlled. I stopped breathing and was in a coma. It took a long time to recover from this event (it was predicted I wouldn’t). The next year, I met a monster, and was abused. The finale was being thrown off a building at fifteen. My healing has taken over twenty years. There are some things that have helped.
1. I can’t handle violence of any kind. I can’t discuss literature, nor movies, let alone view them, if they are violent. At first, I didn’t want people to think I was fragile. I didn’t want them to see the distress that talking about violence (parcelled as entertainment to the masses), conjured. I would pretend that it wasn’t hurting me. Nowadays, I don’t pretend. I gracefully bow out of conversations and invitations which would bring me into this sphere.
2. I couldn’t leave the house by myself, even to go to the letterbox. It has taken many years and many small trips to gather the strength to go farther afield. I plan ahead, and the apps I have on my phone make my preparations easier. If you are agoraphobic, be kind to yourself. Every little step is a triumph. My major incentive was that I had to get to the IVF clinic early in the morning, and simply had to do it. It made me braver than I actually felt! Now I take my daughter everywhere, and the freedom is liberating!
3. I have had to confront my deepest fears. The ones I was frightened of encountering, as I would surely fall apart. My fears included rejection, loneliness, being left alone and finding out that people weren’t as they appeared. Confronting these fears has been terrifying, and it has hurt. I have uncovered that people I looked up to were abusive behind closed doors. I have been let down and let go, but I have survived. I learnt not to leave myself behind in the process. Comforting myself became of premium importance.
4. People see a smiling, functional adult when you are out and about. They don’t recollect the child kept alive in Intensive Care on a respirator. They came into my life during a different chapter. I know what it took to get to here. The hundreds of hours of physiotherapy, the scores of surgeries… I have to remind myself of my achievements and give myself a quiet pat on the back.
5. Boundaries are a big one for a survivor. I felt as vulnerable as a newborn when I started to make a life for myself. I believed anything anyone said, and believed everyone was a friend. It has taken trial and many errors to come up with boundaries, and to trust my judgement above all else. It was a revelation, to give myself the space to honour my instincts. If a person or situation doesn’t sit right, and makes me uncomfortable, I walk away. It is imperative to do so, as I have a little girl watching me. I need to display good boundaries so she knows that its okay to be in touch with her own. It has sometimes taken me being struck mute in the company of somebody who is toxic, for me to comprehend that my body is trying to protect me by producing physical symptoms. I am free, and thus I get to decide who stays in my life. It may not be anything that anyone is doing. Rather, they remind me of someone from the past. I still have to honour my discomfort.
6. Things will trigger me on a daily basis, and much of it is out of my control. It could be a song coming on in the supermarket, an aftershave I detect in passing. It might be a conversation, or visiting a friend in a hospital where I had prior surgery. Deep breaths are required, and sometimes a visit to the lady’s restroom to compose myself. I tell myself that my anxiety is a natural reaction, and I am doing fine. If I am with close friends, I will tell them that a memory has come up. If I am not, I will breath deeply, find a focal spot to concentrate on, and reassure myself quietly.
7. I will not drink to excess, nor take tablets to blot out a bad day. Sometimes, the memories hit hard, and along with the massive amount of pain I suffer, it becomes overwhelming. Alcohol is a depressant, and thus, is disastrous as an antidote. I will only have alcohol when in the company of friends at dinner, or as a toast of celebration. It only compounds the depression which inevitably comes after overworked adrenals have crashed. Instead, I go for a walk, swim or am otherwise active. It helps tremendously.
8. I will space out at times. When you hardly sleep, and are in pain, it happens naturally. When you put flashbacks or a panic attack into the mix, let’s say I am sometimes away with the fairies! Writing (and preparing for a writing task), also lends itself to spacing out. If you holler at me on the street and I don’t respond, that’s why! I am escaping into my inner world, which is expansive and magical. I nearly jump out of my skin when I am walking along and a car beeps me. I remain jittery for the rest of the day. I am hyper vigilant; always scanning a crowd for danger, even when in my own world. It’s quite a combination!
9. You are allowed to say “no” to a request. You are allowed to rest. I keep going until I can’t, and at that point, I retreat for a bit. I have to. It is a revelation, when you learn that you can keep free spaces in the calendar. Even thirty minutes to sip tea and daydream is heavenly. I need time alone to restore and reboot. Time is precious, and I try to use it wisely.
10. My survival has been an odyssey of epic proportions. I tried to run from the memories. I attempted to smother them, as one instinctively does a fire. The smoke streams from underneath the cloth, and then the flames explode forth in a cacophony of rage. It is like burning off disease, only to have damaging adhesions form underneath. Running doesn’t work, and it certainly doesn’t help. Over many years, I have visited my places of trauma. I have wept and I have released at each site. I only did so when I was ready. You have to be ready. My natural instinct is still to run when triggered, but now I have tools. They come in the form of a laptop, a paintbrush, a pastel. They come to me as bird song, my walking shoes, my friends and my music.
When I was a child, I had big dreams. I had a determined spirit and an acute awareness that what was being done to me was not only wrong, but evil. I felt as though a cannon had ripped through my psyche, smattering me into pieces. Over time, I have laid out all the pieces, and put them into place. I am glued, sewn, fused and grafted together. I was once a china doll. Now I am reinforced and can never be broken again. It takes time to heal. You will want to give up. You will consider yourself beyond repair. You will want to run and you will try to escape your own mind. You will want to give up. Please don’t. The joy of finally accessing the tools to help you cope are worth the fight.
I had my hair done yesterday by a professional. I can’t tell you how decadent it felt to have someone wash and style it. I had previously painted my hair in turquoise and aqua tones with fudge, and cut it myself, much to the amusement of the real hairdresser. She was a beautiful young woman, and confessed that she wants to write. I hope I convinced her that she could; that she had many untold stories begging to be shared. She watched my daughter dancing to the music over the salon’s speakers, and quietly wondered what her children would be like. “It is a delicious surprise,” I smiled. “They will bring more joy than you ever anticipated.” After my hair was done, I bid this angel farewell. I had Lady GaGa’s song, Til it Happens to you in my head. I had watched in awe as she performed this extraordinary song at The Oscars. For over twenty years, I have tried to articulate my experience, and damn, this song said it all. I was rendered speechless after hearing it.
I boarded the bus home, and a news bulletin came on the radio. Cardinal Pell had been speaking in Rome, and essentially proclaimed that children weren’t believed back in ‘those days.’ He wasn’t even sure that he knew it was a crime. He took no responsibility. A lady seated near me called out to the bus driver that she was infuriated by his response. The driver grimly nodded and I stroked my little girl’s hair, silent. I wondered how many on that bus had been abused as children.
13 years of age
I recall the dread I felt when I needed to go to the toilet after being repeatedly raped. I would cry and shriek in pain, my kidneys infected and my ureter bleeding. Still, nobody helped. Everybody knew and the good people that were trying to make it stop, were syphoned far away from me. I was urged to drink more water. Day after day after day of being abused. Death seemed a more attractive option than living at the time.
I was in the clinic with a decorated photographer. She shot for Vogue amongst other publications, and her mother had a title, by order of the Queen. She handed me a beautiful green journal, and urged me to write. “Song lyrics, words and sources of inspiration,” she advised. “One day you will open it, and see how far you have come.”
Oh yes, I have come a long way. I don’t quite know how I pulled it off. I was pounced on like I was game and he was the hunter. When I was bloodied and damaged, I was discarded. There will be one indelible image seared into my mind when I recall the Royal Commission of 2015-2016. It will be a spouse’s retort to a columnist who had defended Pell. This is Clare Linane’s eloquent response.
It is always there, waiting to be triggered. I tiptoe through life, roaming the vast, wild coastline, visiting Sydney’s Islands and watching theatre. Perennially searching for beauty. It helps. Everyone who has been alone with the horror of abuse as a child can take comfort at the outrage today. They are being held accountable. At last! At last! It doesn’t take away the pain and anger stemming from the years of silence. I hope that in your search for peace, you stumble upon things of beauty too. We shall never be silenced again.
When one is undergoing IVF, it is imperative that one has contact with people who understand what you are going through. I was lucky enough to meet these two fabulous ladies-amongst many beauties-online during my first tenuous attempts. We made each other laugh and we provided shoulders to cry on. Nobody else understood our acronyms, such as epu and tww. Nobody else could get a take on how emotions could swing from giggles and sweetness to unadulterated rage in moments. Louise came and visited me when I had endometriosis surgery in 2007. My daughter was a newborn when Lou came to my door with flowers and food. She had never seen me in person before, and here she was, feeding me lunch whilst I stumbled to the living room, clad in pyjamas with wild hair. That is the gift of friends, isn’t it? You don’t need to put on an act, nor window dress. When someone can see that far into your eyes as to obtain your soul, what’s the point? We can say anything, and none of us bat an eyelid.
We have laughed about ridiculous things, and gasped in wonder at each other’s life events. One of these ladies has a dog who has been uncovered to be a hermaphrodite. It only makes the little dog more unique in our eyes. They came over with their hard-won families and we hung out for several hours. I was happy listening to their chatter, bursting in with occasional mirth at how absurd the conversation was. They walked with me through the hell that is infertility, and I am so glad that they are in my life.
We are planning adventures for later this year. Australia, you have been warned!
We met up with some families this week at Bondi Beach. It’s a lovely trip by bus from the city, and you get to meet some real characters. On our last trip, we came across a regal ninety year old woman, dressed to the nines. My daughter still talks about her, and she has provided a point of reference for the possibilities offered in older age. I had put 50+ sunscreen on my daughter, and myself, though I neglected my neck, to my peril. It was cool and overcast when we arrived, a dangerously deceptive combination. It didn’t take long for the sun to burst forth, in all it’s sizzling glory. There was something special about being at Bondi Beach, particularly when you don’t have the hassle of obtaining parking. A bus is the way to go! The kids had great fun, alternating between the beach and pool.
The next morning, we got up and did it all again, this time going to Balmoral Beach. On the way, we had cupcakes and ice cream at The Classic Cupcake Co. in Double Bay. Oh my goodness! Made from natural ingredients, they were a taste of heaven. I had the Midnight Mint Cupcake.
As we made our way to the beach, we witnessed a near-collision in Double Bay. An inch more and the cars would have hit. The woman who had nearly caused the accident decided to come into our lane in her ostentatious car. My friend beeped at her to warn her that we were too close behind, and the other driver made some very rude gestures! She was perfectly coiffed, aged in her fifties and old enough to know better. Money can’t buy class! The kids ran to the water, whilst we ordered chips and potato scallops. I smiled as seagulls gathered around. I fancy myself as a Bird Woman, whom understands their secret language. “I will give you a chip or two,” I smiled. “Just let me open the box.” Out of nowhere, a seagull swooped and its claws scraped the side of my face. Another one followed suit, and it pecked my face as it searched for a chip. “Little buggers!” I cried! “P*%$ off!” They were vicious; intent on stealing chips, and there were so many gathered that we were forced to move off the beach. I had never seen anything like it! Normally, birds love me! They followed us to a table, and fortunately, a Pomeranian named Romeo gallantly chased them away. The brave little dog received lots of pats from the kids!
We caught a train to an inner-city stop, and as we waited for my daughter’s dad to drive us home, I decided to show my little girl where we once lived. It was a semi-detached house in a grand old street, shaded by towering trees. I got a real kick out of pointing out where our Aboriginal neighbour lived, as well as two elderly sisters, now departed from this world. I stopped at the gate to our former abode, picturing myself at 20. I was writing and had started my business here, creating art for shops in Newtown and the city. I had also started my journey of infertility here, having been given a strong injection which was promised to slow the progression of endometriosis (which they hadn’t determined I had). Instead of making me feel better, it caused side-effects so violent that I was bed-ridden for a good year. It was here I feared I would never have my daughter, and it was here I wished with all my heart that I would.
As I glanced up at canopy of trees, I was appalled that I had ceased to appreciate them properly at the time. They don’t preserve streets and grand architecture as they used to; like they did on this particular street. My daughter was taken with the street art, and the park at the end of the street. As I watched her roll down a hill and perform cartwheels, my throat constricted with emotion. The amount of times I sat on that very hill in that little park… Dreaming of having a child, and of what life might be.
I sat next to her, and told her of the life I lived long before she arrived. I talked of my hopes and dreams, and also of my fears. I hadn’t been back to the street for many years. I can still hear the mail being dropped through the slot in our door. I can still feel the warmth from the old gas oven in the kitchen I painted turquoise. I can see me. I haven’t changed that much, except that I am weathered. We all get weathered along the way, to varying degrees. Distressed and shabbily chic. I am glad I thought to take her back. I hope that the girl on the hill could feel our visitation through time and space. I hope she could sense that she was going to be okay. I hope she could sense the little girl doing cartwheels nearby. I am glad I got too see the canopy of trees, as if for the first time.
I had (another) birthday! For someone who wasn’t predicted to reach 16, they are coming around in rapid succession these days! I get self-conscious and usually don’t organize anything for my birthday. I get frightened that I wont receive a reply. I have to work on the long-held belief that people will leave me. I have set up a life of independence to make sure that I am not in that position. I feel like a child, shyly asking others to come hang out with me. Some dear ones know me (frighteningly) well, and took it out of my hands. I went to the movies with a treasured soul-sister the evening before, and we laughed hard! The local council even put on a fireworks display, and we parked and talked as we watched the champagne crackers glitter and shimmer.
The next morning, I woke to a knock at the door, and three friends were standing there, with breakfast for us all. I was touched by their kindness and we enjoyed a feast of pastries, fruit and coffee. My birthday was to be a busy day, of doctor’s appointments and going to a friend’s for a catch-up. I was waiting on a lovely cedar dining table and chairs to be delivered before I could go out. I had purchased them from a second-hand shop-extremely cheaply-and someone else had organized delivery, then notified me. Time passed, and there was still no sign of the furniture. I messaged my friend to apologize, hoping I may get there later. I ended up having to cancel the doctor’s visit, as by mid-afternoon there was stil no sign of the table and chairs. I was on the phone to the store when a friend called in. She spilled the beans that I had missed a little surprise party in my honor! I was mortified, particularly when the store told me that they did deliveries to my area the next day! I had stayed home for nothing! It meant the world to me that these three ladies wanted to spend time with me on my birthday, and even though I didn’t get over, I will carry their thoughtfulness with me all my days.
In the evening, four friends took me out and we enjoyed a meal at a Cuban restaurant. We laughed and were silly and I felt celebrated, enough to carry me through another year.
My little girl performed a dance and song for me, and presented me with poems, cards and clay ornaments she had made. The whole day meant so much to me, even though I missed my own surprise party! I have to overcome my fear of being rejected and left alone. I am trying to reach out more and plan fun things with others. I am not that child left looking out the door of a clinic, waiting for visitors that don’t show up. I am surrounded by good people. I have to be brave enough to let them in.
A new school year has begun in Australia, and I am excited about what is ahead. I have tweaked and adapted our programme from last year. I was a newbie with home schooling and excitedly booked my daughter into a wide range of things, too much. This year, we are aiming for a decent mix of field trips, workshops and home days. They are equally important. I have seen this little girl grow in confidence, and it has been thrilling to witness. I won’t really demand that she calls me ‘Your Majesty’ during school hours. Being called ‘Mum‘ is just fine.
When I was nineteen, I started a business, selling my art and poetry, as well as crystals and curiosities at markets and on consignment. I was extremely busy during this ten-year period, particularly when I reflect on all the surgery I had at the same time! I lived in a grungy, funky part of Sydney, and would often walk down the street to hang out at the all-night bookstore and grab some fabulous Indian food. I was into ceramics, and had my Greenware fired in the kiln of a nearby business, before painting them. I only managed to hang onto two of my pieces from this time. Before I left the area, I retrieved them from the shop where they had recently been placed…
I haven’t paid them much mind in the intervening years, only to gift them a smile as I passed them in my living room. I have pared back my commitments since Christmas, and have made time to clean and reflect, de-clutter and organize my home. I stopped yesterday and studied my little friends, reflecting on a time when I had created and painted, written and pottered. I recalled the nights spent painstakingly painting them; the joy I felt when what I had created was bought. I looked closer, and noted that they hadn’t been cleaned for a while. Getting a wipe, I lovingly set to work. I turned them over, and there on the base was my daughter’s name, a daughter I wouldn’t have for another decade. I don’t know why I had thought to send them off with the following: Painted with love by E.Rose.
A chill went through me. When I had finally fallen pregnant with IVF, I had another name altogether picked out for this baby, if it was a girl. In my eighth month, I dreamed of her, and she said that her name was E. Rose. (full name obscured to protect privacy). I changed her name accordingly. I had no recollection of ever signing my work with her name years before. How many hundreds of times had I done so? I called to her and told her the story and she was as delighted as I. “You knew me even then! You loved and wanted me before I was here!” I certainly did. Slowing down and having time to notice my little gnomes gave me a great gift. My daughter was intrinsically entwined in my younger years, letting herself be known, even on an unconscious level. When you say “I can’t do this anymore,” and allow yourself to slow, it’s amazing what you notice. Gnomes may even hold a breath-taking, thrilling message, just for you.
As we embark on a New Year, I would like to say thankyou for reading my blog. In turn, I have alternately been moved to tears, laughter and happiness by your writing. May you have a blessed 2016. I have a feeling it will be a better year for us all. xxx
The WordPress.com stats helper monkeys prepared a 2015 annual report for this blog.
Here’s an excerpt:
The concert hall at the Sydney Opera House holds 2,700 people. This blog was viewed about 14,000 times in 2015. If it were a concert at Sydney Opera House, it would take about 5 sold-out performances for that many people to see it.
RAPHAELA ANGELOU 